Vendredi 5 octobre 2018
07 h 00 – 08 h 00
ACTIVITÉS AUTOTHÉRAPEUTIQUES
07 h 45 – 08 h 45
Chair: David K. Wright, University of Ottawa, Ottawa, ON, Canada
Discussant: Donna Wilson, University of Alberta, Edmonton, AB, Canada
A) Responding to Urgency of Need in Palliative Care: Stage Two of the Development of a Palliative Care Triage Tool
Bethany Russell1,3, Sara Vogrin1, Anna Collins1, Nicole Hennessy-Anderson2, Jodie Burchell1, Brian Le4,5, Caroline Brand6,7, Peter Hudson2,3,8, Vijaya Sundararajan1,2, Jennifer Philip1,5
1. University of Melbourne, Melbourne, VIC, Australia
2. St Vincent's Hospital Melbourne, Melbourne, VIC, Australia
3. Royal Melbourne Hospital, Melbourne, VIC, Australia
4. Victorian Comprehensive Cancer Centre, Melbourne, VIC, Australia
5. Melbourne Epicentre, University of Melbourne and Melbourne Health, Melbourne, VIC, Australia
6. Monash University, Melbourne, VIC, Australia
7. Queens University, Belfast, United Kingdom
B) Preparing for the Dying and 'Dying in Honor': Guineans' Perceptions of Palliative Care in Ebola Treatment Centers
Elysée Nouvet1, Sékou Kouyaté4, Kevin Bezanson7, Oumou Bah-Sow3,2, Alpha Amadou Diallo5,6, Lisa Schwartz2, Matthew Hunt8, Rachel Yantzi2, Sonya DeLaat2, Pathé Diallo5,6
1. Western University, London, ON, Canada
2. McMaster University, Hamilton, ON, Canada
3. Hôpital National Ignace Deen, Conakry, Guinea
4. Université Sonfonia, Conakry, Guinea
5. Université de Conakry-Guinée, Conakry, Guinea
6. Ministry of Public Health, Government of Guinea, Conakry, Guinea
7. Northern Ontario School of Medicine, Lakehead & Laurentian Universities, Thunder Bay, ON, Canada
8. McGill University, Montréal, QC, Canada
C) Place-based Experiences of Formal Healthcare Settings by People Experiencing Vulnerability at the End of Life
Melissa Giesbrecht1, Kelli Stajduhar1, Ashley Mollison1, Bernie Pauly1, Sheryl Reimer-Kirkham2, Ryan McNeil3,4, Bruce Wallace1, Caelin Rose1, Naheed Dosani5
1. University of Victoria, Victoria, BC, Canada
2. Trinity Western University, Langley, BC, Canada
3. BC Centre on Substance Use, Vancouver, BC, Canada
4. University of British Columbia, Vancouver, BC, Canada
5. Inner City Health Associates, Toronto, ON, Canada
09 h 00 – 10 h 30
Chair : TBD

L’IMPORTANCE DES ESSAIS RANDOMISÉS ET CONTRÔLÉS DANS L’AMÉLIORATION DES SOINS PALLIATIFS

David Currow, professeur de médecine palliative, IMPACCT, Université de technologie de Sydney, Sydney, Australie


Les personnes en fin de vie sont parmi les plus fragiles de celles auxquelles on fournit des soins cliniques. Pour disposer des meilleures données probantes permettant de déterminer les plus ou les moins susceptibles d’en bénéficier ou celles qui pourraient même en souffrir, il est nécessaire de mener des essais randomisés contrôlés de qualité au sein de cette population. Il est presque impossible d’extrapoler de telles données seulement à partir des connaissances cliniques. Connaître l’affect net (bienfaits et préjudices) de ces soins est fondamental pour continuer à parfaire notre pratique clinique auprès de toutes les personnes aux prises avec une maladie limitant l’espérance de vie, qu’elles soient orientées vers des services de soins palliatifs ou non.

ÉVALUER NOS CONVERSATIONS SUR LE SENS ET LE MYSTÈRE

Barbara Pesut, titulaire de la chaire de recherche du Canada sur la santé, l’éthique et la diversité; professeure, École des sciences infirmières, Université de la Colombie-Britannique, Kelowna, BC, Canada


La spiritualité et la religion traitent de sens et de mystère, des notions difficiles à aborder même dans les meilleurs moments. Mais, dans un contexte où diverses expressions spirituelles remplacent le langage et le sens collectifs de la religion, trouver un « langage commun » est encore moins évident. Certains théologiens qualifient ce phénomène de deuil sémantique. De fait, des patients et des familles qui vivent une perte peuvent être doublement endeuillés à cause d’une incapacité à exprimer ce qui leur importe le plus, au cours des rencontres cliniques. La présente séance va nous permettre d’explorer la façon dont les flux culturels ont influé sur nos capacités à parler de spiritualité et de religion, et comment il nous est possible d’envisager de soutenir autrement les patients et les familles en milieu de soins palliatifs.

10 h 30 – 11 h 00 – PAUSE

11 h 00 – 15 h 30

CE QU'IL FAUT CHOISIR :


À 11 h, les participants peuvent assister soit au Séminaire spécial sur le deuil (F01/G01) qui se poursuit jusqu’à 15 h 30; ou choisir parmi plusieurs ateliers à 11 h (F02-F14), et à 14 h (G02-G14).

Co-présidence : Chris McKinnon, Université McGill, Montréal, QC, Canada
Johanne de Montigny, Psychologist, Montréal, QC, Canada

Robert A. Neimeyer, University of Memphis, Memphis, TN, É.-U.

Cet atelier clinique aborde le deuil comme un processus de reconstruction plutôt que de renonciation aux liens avec nos défunts. Entre autres objectifs d’apprentissage : (1) caractériser les dimensions de l’attachement insécure qui rend difficile l’acceptation avant comme après le décès; (2) décrire les facteurs de risque de deuil anticipé en milieu hospitalier et de soins palliatifs; (3) se familiariser avec des techniques de psychothérapie visant à sceller un lien constructif avec la personne décédée

11 h 00 – 12 h 30

F01

Sens et attachement: Retrouver la cohérence au lendemain d’une perte



14 h 30 – 15 h 30

G01

Empreinte de vie : préserver le lien à travers un héritage mémoriel

11 h 00 – 12 h 30
CHOIX DU SÉMINAIRE SPÉCIAL (F01) OU DES ATELIERS SIMULTANÉS (F02 – F14)
F01
A=>F
SÉMINAIRE SPÉCIAL

LE DEUIL : Reconstruire un lien durable : retrouver l’histoire et la trame de la relation

(1re partie)

F02
WORKSHOP/PROFFERED PAPERS – Family Participation and Support

A 45-minute workshop, and two 15-minute presentations, each followed by a 5-minute question period

A) Where's the Family: How to Incorporate Family Participation in Home Hospice Care Plan Meetings

Debra Parker Oliver, Paul Tatum, University of Missouri, Columbia, MO, United States

This workshop demonstrates how to involve family in the hospice care plan meeting and the benefits and challenges. We will demonstrate a web-conferencing platform and use videos of real encounters.

B) Benefits of Family Meetings for Hospitalized Palliative Care Patients and Their Family Caregivers

Peter Hudson1,2,3, Kristina Thomas1, Afaf Girgis4, Geoffrey Mitchell5, Jenny Philip1,2,6, Deborah Parker7, David Currow7, Danny Liew8, Brian Le9, Juli Moran10, Caroline Brand8

1. St Vincent's Hospital Melbourne, Melbourne, VIC, Australia
2. The University of Melbourne, Melbourne, VIC, Australia
3. Vrije University Brussels, Brussels, Belgium
4. The University of New South Wales, Sydney, NSW, Australia
5. University of Queensland, Brisbane, QLD, Australia
6. Victorian Comprehensive Cancer Centre, Melbourne, VIC, Australia
7. University of Technology Sydney, Sydney, NSW, Australia
8. Monash University. Melbourne, VIC, Australia
9. Melbourne Health, Melbourne, VIC, Australia
10. Austin Health, Melbourne, VIC, Australia

C) Symptom Management Program Combined with an Intervention Based on Basic Buddhist Principles on Caring Behaviors of Family Caregivers in Advanced Cancer Patients

Noppamat Pudtong1, Sureeporn Thanasilp1, Ratchaneekorn Upasen1, Janya Chimluang1, Lanchasak Akkayagorn2, Wilailuck Tantitrakul3

1. Chulalongkorn University, Bangkok, Thailand
2. King Chulalongkorn Memorial Hospital, Bangkok, Thailand
3. Hospital of Excellence in Thai Traditional and Complementary Medicine for Cancer at Sakonnakhon, Sakonnakhon, Thailand

F03

A) Achieving Equity in Palliative Care: Researchers and Practitioners from Three Canadian Cities Discuss What It Takes

Kelli Stajduhar1, Naheed Dosani2, Simon Colgan3

1. University of Victoria, Victoria, BC, Canada
2. Inner City Health Associates, Toronto, ON, Canada
3. Alberta Health Services, Calgary, AB, Canada

Drawing on research findings and practitioner experiences, this workshop engages participants to discuss and apply promising practices for promoting equity for all at the end of life.

B) A Palliative Approach to Care for Non-Healthcare Workers Supporting People Who Are Homeless

Paul Holyoke,Sandra Tudge, Katherine Rizzi, Saint Elizabeth Health Care, Markham, ON, Canada

In this workshop, we will describe the development of a curriculum on the palliative approach to care for non-healthcare care workers within a collaborative pan-Canadian partnership. Participants will have an opportunity to experience 'learning' the curriculum.

F04

A) Prenatal Palliative Care: 'The Dawn of Care at the End of the Beginning of Life'

Lisandra Stein Bernardes1, Chalotte Wool2, Berthélémy Tosello3

1. University of São Paulo, São Paulo, Brazil
2. York College of Pennsylvania, York, PA, United States
3. AP-HM Hôpital Nord, CHU Marseille, Marseille, France

This workshop will provide a general framework to palliative care after prenatal dia - gnosis of fetal malformation, and will delineate its uniqueness, current challenges and opportunities.

B) How to Implement a Perinatal Hospice Program: An Interdisciplinary Toolkit

Megan Doherty1,2,3,4, Lynn Grandmaison-Dumond1,2, Carol Chevalier1,2, Kathryn Brooks1,2

1. Children's Hospital of Eastern Ontario, Ottawa, ON, Canada
2. Roger Neilson House, Ottawa, ON, Canada
3. University of Ottawa, Ottawa, ON, Canada
4. World Child Cancer, London, United Kingdom

Explore a holistic team model for providing Perinatal Hospice, which supports families who are expecting the birth of a child with a known potentially lethal or life-limiting illness.

F05
PROFFERED PAPERS – Communication

A series of 15-minute presentations, each followed by a 5-minute question period

A) Barriers to End-of-Life Discussions Among Hematologists: a Qualitative Study

Chloé Prod'homme, Centre d'éthique médicale and Centre hospitalier régional universitaire Lille, Lille, France

B) Creation of Individualized Care Plans in High Risk Oncology Patients: A Team Based Model to Decrease Unnecessary Hospitalizations and ED Utilization

Ruth Lagman1, Armida Parala-Metz2, Girish Kunapareddy1, Joseph Hooley1, Pramod Prinnamaneni1, Christa Poole1, Helen Tackitt1, Alberto Montero1

1. Cleveland Clinic, Cleveland, OH, United States
2. Carolinas Health Care System, Charlotte, NC, United States

C) Patient and Family Related Barriers of Integrating End-of-Life Communication into Advanced Illness Management

Jennifer Im1, Susanna Mak1,2, Ross Upshur1,3, Leah Steinberg1,2, Kerry Kuluski1,3

1. University of Toronto, Toronto, ON, Canada
2. Mount Sinai Hospital, Toronto, ON, Canada
3. Bridgepoint Collaboratory for Research and Innovation, Toronto, ON, Canada

D) Overcoming Key Issues to Using the Serious Illness Communication Guide Across Clinical Settings with an Interprofessional Team

Jennifer Kryworuchko1,2, Patricia Strachan3, Elizabeth Beddard-Huber2, Della Roberts4, Susan Brown5, Vicki Kennedy6, Mia Marles7

1. University of British Columbia, Vancouver, BC, Canada
2. BC Center for Palliative Care, New Westminster, BC, Canada
3. McMaster University, Hamilton, ON, Canada
4. Island Health Authority, Victoria, BC, Canada
5. Fraser Health, Surrey, BC, Canada
6. Interior Health, Kelowna, BC, Canada
7. Providence Health Care, Vancouver, BC, Canada

F06
PROFFERED PAPERS – Research

A series of 15-minute presentations, each followed by a 5-minute question period

A) Navigation Rates for Adults with Cancer at End of Life

Grace Park1, Grace Johnston1,2, Robin Urquhart1,2, Gordon Walsh1, Meg McCallum1, Krista Rigby1

1. Dalhousie University, Halifax, NS, Canada
2. Nova Scotia Health Authority, NS, Canada

B) A Pan-Canadian Palliative Care Research Collaborative

James Downar1,4, Vickie Baracos2, Peter Lawlor3, Camilla Zimmermann1, Sarina Isenberg4, Peter Tanuseputro3, Deborah Dudgeon5, Lyle Galloway6, Russell Goldman1,4, Sara Urowitz7, Bruno Gagnon8

1. University of Toronto, Toronto, ON, Canada
2. University of Alberta, Edmonton, AB, Canada
3. University of Ottawa, Ottawa, ON, Canada
4. Sinai Health System, Toronto, ON, Canada
5. Queens' University, Kingston, ON, Canada
6. University of Calgary, Calgary, AB, Canada
7. Canadian Partnership Against Cancer, Toronto, ON, Canada
8. Université Laval, Québec, QC, Canada

C) Implementation of Quality Indicators for Palliative Care: A Process Evaluation Using the RE-AIM Framework

Kathleen Leemans1,2, Luc Deliens1, Lieve Van den Block1, Joachim Cohen1

1. Vrije Universiteit Brussel and Ghent University, Brussels, Belgium
2. University Hospital of Brussels, Brussels, Belgium

D) Pan-Canadian Quality Indicators for Patients at End of Life Derived from interRAI Data

Hsien Seow1, Lisa Harman2, Lisa Barbera3, Rinku Sutradhar3, Kim McGrail4, Fred Burge5, Beverley Lawson5, Kelvin Chan3, Stuart Peacock4, Dawn Guthrie2

1. McMaster University, Hamilton, ON, Canada
2. Wilfred Laurier University, Waterloo, ON, Canada
3. University of Toronto, Toronto, ON, Canada
4. University of British Columbia, Vancouver, BC, Canada
5. Dalhousie University, Halifax, NS, Canada

F07
PROFFERED PAPERS – Pain and Symptom Control

A series of 15-minute presentations, each followed by a 5-minute question period

A) Symptom Correspondence Between the ESAS and QUAL-E in Patients with Advanced Cancer

Brian Li, Kenneth Mah, Nadia Swami, Ashley Pope, Christopher Lo, Gary Rodin, Breffni Hannon,Camilla Zimmermann, Princess Margaret Cancer Centre, Toronto, ON, Canada

B) More Than Meets the GI: Application of an Algorithm for the Medical Management of Malignant Bowel Obstruction

Anessa M Foxwell, Tanya Uritsky, Hospital of the University of Pennsylvania, Philadelphia, PA, United States

C) A Multidimensional Strategy to Improve Quality of Life in Patients with Multiple Symptoms and Palliative Care Needs: the Development of the MuSt-PC

Albert de Heij1, Lotte van der Stap2, Agnes van der Heide3, Yvonne Engels4, Heidi Fransen5, Daisy Janssen6, Saskia Teunissen7, Henk van Weert8, Myra van Linde9, Yvette van der Linden2, An Reyners1

1. University Medical Center Groningen, Groningen, The Netherlands
2. Leiden University Medical Center, Leiden, The Netherlands
3. Erasmus University Medical Center, Rotterdam, The Netherlands
4. Radboud University Medical Center, Nijmegen, The Netherlands
5. Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands
6. Maastricht University Medical Center, Maastricht, The Netherlands
7. University Medical Center Utrecht, Utrecht, The Netherlands
8. University of Amsterdam, Amsterdam, The Netherlands
9. VU University Medical Center, Amsterdam, The Netherlands

D) Maximizing Safety and Efficacy in the Methadone Dance: Application in Palliative Care

Mary Lynn McPherson1, Kathryn A. Walker1,2, Mellar P. Davis3

1. University of Maryland School of Pharmacy, Baltimore, MD, United States
2. MedStar Health, Columbia, MD, United States
3. Geisinger Health, Danville, PA, United States

F08
PROFFERED PAPERS – Compassionate Communities

Three 20-minute presentations, each followed by a 10-minute question period

A) The CHOICE Project: A Randomised Exploratory Pilot Trial Testing the Acceptability and Preliminary Efficacy of a Public Health Communication Intervention

Anna Collins1, Sue-Anne McLachlan1, Jennifer Philip1,2

1. St Vincent's Hospital Melbourne, University of Melbourne, VIC, Australia
2. Victorian Comprehensive Cancer Centre, Melbourne, VIC, Australia

B) Starting from Scratch: Engaging Communities Using an Asset-Based Approach

Mary Matthiesen, Lisa Deal, Mission Hospice & Home Care, San Mateo, CA, United States

C) Compassionate Communities in British Columbia: A Successful Social Palliative Care Model

Eman Hassan, Kathy Kennedy, Doris Barwich,BC Centre for Palliative Care, Vancouver, BC, Canada

F09
PROFFERED PAPERS – Education

A series of 15-minute presentations, each followed by a 5-minute question period

A) Secondary Emotional Labor: The Implications of Supervisor Responses to Emotional Labor of Hospice Nurses

Barbara DiCicco-Bloom1,2, Benjamin DiCicco-Bloom2

1. City University of New York, NY, United States
2. Franklin and Marshall College, Lancaster, PA, United States

B) Experience-based Design: Using Quality Improvement Strategies to Identify Family and Staff Experiences in Conversations at End of Life

Jennifer Wong1,2,3, Bailey Hollister1,3, Emily McRobert3, Jim Huth1,2,3, Alena Hung1

1. Sunnybrook Health Sciences Centre, Toronto, ON, Canada
2. Sunnybrook Research Institute, Toronto, ON, Canada
3. University of Toronto, Toronto, ON, Canada

C) An Innovative Integrated Competency-based Approach in Palliative Medicine for an Interprofessional Team

Amandine Mathe1,2, Benoit Burucoa1,2, Marie-Noelle Belloir3, Josyane Chevallier4, Sigolène Gautier5, Marc-Elie Huon6, Danièle Leboul7, Stéphane Moreau8, Karin Parent9, Jean Jouquan6, Florence Parent10

1. Centre Hospitalier Universitaire de Bordeaux, Bordeaux, France
2. Université Bordeaux-II, Bordeaux, France
3. Centre Hospitalier Universitaire de Rennes, Rennes, France
4. Centre Hospitalier Universitaire de Montpellier, Montpellier, France
5. Hôpital des Charmettes, Lyon, France
6. Centre Hospitalier Universitaire de Brest, Brest, France
7. Maison Médicale Jeanne Garnier, Paris, France
8. Centre Hospitalier Universitaire de Limoges, Limoges, France
9. Groupe Hospitalier de Loos-Haubourdin, Loos-Haubourdin, France
10. Université Libre de Bruxelles, Bruxelles, Belgique

D) Engaging Bereaved Family Members in the Development of a Palliative Care Patient/Family Education Resource

Meg McCallum1,2, Leslie Hill1,2, Cheryl Tschupruk2, Heather Brander2

1. Nova Scotia Cancer Care Program, Halifax, NS, Canada
2. Nova Scotia Health Authority, Halifax, NS, Canada

F10
PROFFERED PAPERS – Ethical Issues

A series of 15-minute presentations, each followed by a 5-minute question period

A) Endgame: Philosophical, Clinical and Legal Distinctions Between Palliative Care and Termination of Life

Mary J Shariff, Mark Gingerich, University of Manitoba, Winnipeg, MB, Canada

B) Catholic Health Care, Palliative Care, and MAiD: Creating Space for Practice and Responding to Those We Serve

Ashley J. Payne, Kelly Konyk, Providence Health Care, BC, Canada

C) "Can't We Get This Over With?": Ethical Issues Responding to Suicide Attempts in Hospice

Lara Skarf1,2, Jordana Meyerson1,2, Kelly McKinell1, Stacey Phalen1, Rod Dismukes1, Rachel Meyen1,2

1. Veterans Affairs Boston Healthcare System, Boston, MA, United States
2. Harvard Medical School, Boston, MA, United States

D) Organ Donation in the Context of Medical Assistance in Dying (MAiD)

Matthew Weiss, Centre hospitalier universitaire de Québec et Transplant Québec, Montréal, QC, Canada

F11
WORKSHOP/PROFFERED PAPERS – Dreams and Visions

A 45-minute workshop, and a 15-minute proffered paper followed by a 5-minute question period.

A) Dreams and Visions at the End of Life: What We Know and What We Can Do

Rachel Depner1,2, Pei Grant1, Kathryn Levy1

1. The Center for Hospice and Palliative Care, NY, United States
2. University at Buffalo, Buffalo, NY, United States

Dreams and visions are a common experience among the dying. This workshop will explore research on this topic and basic skills for clinicians who may encounter people having this experience.

B) Delirium, Psychoeducation and Psychological Management of Nearing Death Awareness

Kees Lodder, North Haven Hospice, Whangarei Hospital, Whangarei, New Zealand

F12
PROFFERED PAPERS – Palliative Care in Critical Care Setting

A series of 15-minute presentations, each followed by a 5-minute question period

A) Analysis of Do Not Resuscitate Order (DNR) & Allow Natural Death (AND) Practice in Saudi Arabia: Experience of Three Major Centers

Amani Babgi1, Sami Al Shammary2, Wesam Abuznadah4, Mohammed AboSeda2, Mona Al Shehab3, Helen Mc Grath1, Basim Al Saywi4, Zainab Abdrabalnabi3, Mohammed Mahafzah2

1. Johns Hopkins Aramco Healthcare, Dhahran, Kingdom of Saudi Arabia
2. King Fahad Medical City, Riyadh, Kingdom of Saudi Arabia
3. King Fahad Specialist Hospital, Dammam, Kingdom of Saudi Arabia
4. King AbdulAziz Medical City, Jeddah, Kingdom of Saudi Arabia

B) The End of Life Implications of Patient Categorization on a Medical Ward

Lisa Chan4, Mary Ellen Macdonald1,3, Franco Carnevale1, Robin Cohen1,2

1. McGill University, Montréal, QC, Canada
2. Lady Davis Institute for Medical Research, Montréal, QC, Canada
3. Montreal Children's Hospital, Montréal, QC, Canada
4. University of Ottawa, Ottawa, ON, Canada

C) Evaluation of a Decision Aid Supporting Critically Ill Patients' Decisions About Life-Sustaining Therapies – A Pilot Project

Ariane Plaisance1,2, Patrick Michel Archambault1,2, Annie LeBlanc1

1. Université Laval, Québec, QC, Canada
2. Centre intégré de santé et de services sociaux de Chaudière, Appalaches, Ste-Marie de Beauce, QC, Canada

D) Fostering Palliative Care Among Intensive Care Nurses at a Cancer Center: A Partnership Between Palliative Care and Critical Care Nursing

Sarah Thirlwell, Angela Sandberg, Barbara Lubrano di Ciccone, Diane Portman, Moffitt Cancer Center, Tampa, FL, United States

F13
WORKSHOP/PROFFERED PAPERS – Pain and Symptom Control

A 45-minute workshop and two 15-minute proffered papers, each followed by a 5-minute question period.

A) Palliative Care in Cardiology: the Art of Deprescribing

Martine Lacroix1,2, Julie Sirois-Leclerc1,2,3, Mark Liszkowski1

1. Institut de Cardiologie de Montréal, Montréal, QC, Canada
2. Université de Montréal, Montréal, QC, Canada
3. McGill University, Montréal, QC, Canada

B) Impact of a Comprehensive Ketamine Protocol on Cancer Pain in a Palliative Care Unit

Yee Choon Meng, Provido Mahrley Tanagon, Low Zhi Jun, Ang Ching Ching, Allyn Hum Yin Mei,Tan Tock Seng Hospital, Singapore

C) Anxiety Disorders Contribute to Extent of Opioid Prescription in Head and Neck Cancer: A Longitudinal Study

Melissa Henry1,2, Ali Alias1,2, Saul Frenkiel1,2,3, Keith Richardson1,3, Michael Hier1,2, Anthony Zeitouni1,3, Karen Kost1,3, Alex Mlynarek1,2, Martin Black1,2, Christina MacDonald2, Gabrielle Chartier2, Zeev Rosberger1,2

1. McGill University, Montréal, QC, Canada
2. Jewish General Hospital, Montréal, QC, Canada
3. McGill University Health Centre, Montréal, QC, Canada

F14
PRÉSENTATIONS COURTES – Soins

Une série d’exposés de 15 minutes, chacun suivi d’une période de questions de 5 minutes

A) Les soins palliatifs en orthophonie, aphasie post accident vasculaire cérébrale (AVC) comme modèle type

Mohamed Haciane, Université Mouloud Mammeri, TiziOuzou, Algérie

B) Souffrance et psychodynamique du travail facteur de développement en EMASP

Sophie Chrétien,Charles Joussellin, Hôpital Bichat-APHP, Paris, France


Les soins spirituels : pour une logique spirituelle relationnelle

Mélany Bisson, CIUSSS du Centre-Sud-de-L'île-de-Montréal, Montréal, QC, Canada

12 h 30 – 14 h 30
PAUSE-MIDI ET SÉANCE PLÉNIÈRE SPÉCIALE
(On peut acheter des boîtes à lunch au moment de l'inscription)
12 h 50 – 14 h 05

Organisée en collaboration avec l’Institut de tourisme et d'hôtellerie du Québec (ITHQ)

L’alimentation est synonyme de plaisir, de partage avec les siens, de vie. Pourtant toute la question entourant la nutrition en fin de vie est semée de pièges et de tiraillements entre, d’une part, la personne concernée et ses proches, et de l’autre, ses soignants.

Cette séance proposera des idées créatives sur la façon de répondre à ces défis.



Jean-Marc La Piana et Patricia Chatrian, La Maison, Gardanne, France

Alain Girard et André Martin, Institut de tourisme et d'hôtellerie du Québec, Montréal, QC, Canada

Laurence Brouard-Trudel, Consultante (diplômée de l'ITHQ et de l'Université d'Ottawa), Montréal, QC, Canada

Animatrice : Marie-Claude Lavallée, personnalité connue des grands médias québécois, Montréal, QC, Canada

14 h 30 – 15 h 30
CHOIX DU SÉMINAIRE SPÉCIAL (G01) OU DES ATELIERS SIMULTANÉS (G02 – G14)
G01
A=>F
SÉMINAIRE SPÉCIAL

LE DEUIL : Reconstruire un lien durable : retrouver l’histoire et la trame de la relation

(2e partie)

G02 PROFFERED PAPERS – Care for the Frail Elderly

Three 15-minute presentations, each followed by a 5-minute question period

A) The DIgnity In Advanced DEMentia (DIADEM) Study: Quality of Life of Home Dwelling Patients and Caregiver Burden

Allyn Hum1,2, Riyin Tay1, Noorhazlina Binte Ali2, Huei Yaw Wu1,2, Ian Leong2, Jing Jih Chin2, Angel Lee3, Mervyn Koh1,2

1. Palliative Care Centre for Excellence in Research and Education, Singapore
2. Tan Tock Seng Hospital, Singapore
3. St Andrew's Community Hospital, Singapore

B) The Need for and Value of Nurse Prescribing for Frail Elderly Persons: Findings of a 2017 Irish Study

Donna M Wilson1,2, Jill Murphy2, Anne Fahy2

1. University of Alberta, Edmonton, AB, Canada
2. Limerick University, Limerick, Ireland

C) Palliative Care Principles for the Frail Elder: Optimizing Shared-Decision Making Before End of Life

Keith Swetz1, Ashley Kimeu2, John Batsis3

1. University of Alabama at Birmingham, Birmingham, AL, United States
2. Mayo Clinic, Rochester, MN, United States
3. Dartmouth Hitchcock Medical Center, Lebanon, NH, United States

G03
PROFFERED PAPERS – Palliative Care in Cardiology

Three 15-minute presentations, each followed by a 5-minute question period

A) Feasibility and Acceptability for Home-Based Palliative Care for Patients with Heart Failure

Sarina R. Isenberg1,2, Amna Husain1,2, Susanna Mak3, Leah Steinberg1,2

1. Temmy Latner Centre for Palliative Care, Sinai Health System, Toronto, ON, Canada
2. University of Toronto, Toronto, ON, Canada
3. Sinai Health System, Toronto, ON, Canada

B) The Latest on Heart Failure Palliative Care

Gil Kimel, Cindy Nordquist, St. Paul's Hospital, Vancouver, BC, Canada

C) Management of ICD and LVAD in Palliative Care and Hospice Patients

Jatin Dave1,2,3, Tamara Vesel1,2

1. Tufts University School of Medicine, Boston, MA, United States
2. Tufts Medical Center, Boston, MA, United States
3. New England Quality Care Alliance, Braintree, MA, United States

G04
PROFFERED PAPERS – Pediatric Palliative Care

Three 15-minute presentations, each followed by a 5-minute question period

A) Turning Water into Wine: A New Community Pharmacy Workforce Delivering Pediatric Palliative Care Services Across Scotland

Kate McCusker, Children's Hospices Across Scotland, Scotland

B) To See the World Differently: Influencing and Effecting Change Through Film and Media

Maria McGill1, Mark Sheridan2

1. Children's Hospices Across Scotland (CHAS), Edinburgh, Scotland
2. University of The Highlands and Islands, Inverness, Scotland

C) Pediatric Palliative Care in Rwanda: The Case of Butaro Cancer Center of Excellence

Jean Paul Balinda1, Diane Mukasahaha1, François Uwinkindi1, Marc Hagenimana1, Arielle Eagan2, Vedaste Hategekimana3, Regis Uwizeye3, Xaverine Nyiransabimana3

1. Ministry of Health/Rwanda Biomedical Center, Kigali, Rwanda
2. Harvard Medical School, Harvard, Boston, MA, United States
3. Butaro Cancer Center of Excellence, Partners in Health, Butaro, Rwanda

G05
PROFFERED PAPERS – Palliative Care for Underserved Populations

Three 15-minute presentations, each followed by a 5-minute question period

A) Dying in the Shadows: Injustice, Healing, and Care for Urban Poor Near the End of Life

David Moller, Anne Arundel Medical Center, Annapolis, MD, United States

B) Insights into End of Life Care Provision for Hospitalised Prisoners

Stacey Panozzo1, Jennifer Philip1,2,3, Tamsin Bryan1, Carrie Lethborg1

1. St Vincent's Hospital Melbourne, Melbourne, VIC, Australia
2. University of Melbourne, Melbourne, VIC, Australia
3. Victorian Comprehensive Cancer Centre, Melbourne, VIC, Australia

C) Conceptualizing an Ethics for Prison Palliative Care

Helen Hudson, David Wright, University of Ottawa, Ottawa, ON, Canada

G06
PROFFERED PAPERS – Innovative Technology

Three 15-minute presentations, each followed by a 5-minute question period

A) A Novel mHealth Approach: Mobile Phone Technology for Assessing and Managing Palliative Care Needs for Cancer Patients in Rwanda

Christian Ntizimira1, Blaise Uhagaze2, Eric Kabisa2, Peace Kyokunda2, Emmanuel Nsengiyumva2, Olive Mukeshimana3, Gilles François Ndayisaba4, François Uwinkindi4, Clarisse Musanabaganwa4, Aparna Parikh5, Mark Stoltenberg5

1. Harvard Medical School, Boston, MA, United States
2. Rwanda Palliative Care and Hospice Organisation, Rwanda
3. Kibagabaga Hospital, Kigali, Rwanda
4. Rwanda Biomedical Center, Kigali, Rwanda
5. Massachusetts General Hospital, Boston, MA, United States

B) Automated Prospective Clinical Surveillance for Inpatients at Elevated Risk of One-year Mortality Using a Modified Hospital One-Year Mortality Risk (mHOMR) Score

James Downar1,2,3, Gayathri Embuldeniya2, Shahin Ansari2, Ellen Koo2, Daniel Kobewka4, Erin O'Connor1,2, Peter Wu1,2, Peter Wegier3, David Frost1,2, Leah Steinberg1,3, Russell Goldman1,3, Chaim Bell1,3, Tara Walton5, Judy Costello2, Carl van Walraven4

1. University of Toronto, Toronto, ON, Canada
2. University Health Network, Toronto, ON, Canada
3. Sinai Health System, Toronto, ON, Canada
4. University of Ottawa, Ottawa, ON, Canada
5. Ontario Palliative Care Network, Toronto, ON, Canada

C) Using Social Network Analysis to Optimize the Circle of Care in Compassionate Communities

Nima Moradianzadeh, Pooya Moradianzadeh, Ziad Kobti, Sarah Hansen, Kathryn Pfaff, University of Windsor, Windsor, ON, Canada

G07
PROFFERED PAPERS – Cannabis

A series of 15-minute presentations, each followed by a 5-minute question period

A) Incorporating Medical Cannabis in Supportive and Palliative Care: a Canadian Model

Erin Prosk2, Michael Dworkind1,2, Gligorka Raskovic3, Maria-Fernanda Arboleda1,2, Antonio Vigano1,2

1. McGill University Health Center, Montréal, QC, Canada
2. Santé Cannabis, Montréal, QC, Canada
3. Rossy Cancer Network, Montréal, QC, Canada

B) Cannabis-Based Medications: The Future Co-analgesics of Choice for Cancer Patients?

Maria-Fernanda Arboleda1,2, Vi Dam2, Erin Prosk2, Michael Dworkind1,2, Antonio Vigano1,2

1. McGill University, Montréal, QC, Canada
2. Santé Cannabis, Montréal, QC, Canada

G08
PROFFERED PAPERS – Palliative Care for the LGBTQ Community

A 15-minute presentation followed by a 5-minute question period, and a 40-minute workshop

A) LGBTI Issues in Palliative Care

Prakashni Reddy, Bruce Rumbold, Philomena Horsley, Susan Chong, Latrobe University , Melbourne, VIC, Australia

B) Issues in Palliative Care for Transgender and Gender Non-conforming People

Susan Cadell3,Marie-Claude Grégoire1, Mary Ellen Macdonald2

1. Dalhousie University, Halifax, NS, Canada
2. McGill University, Montréal, QC, Canada
3. University of Waterloo, Waterloo, ON, Canada

Mis-gendering means addressing people with what for them is the ‘wrong’ pronoun, in life or after death. This interactive workshop welcomes all in palliative care. Clinical scenarios will be used.

G09
PROFFERED PAPERS – Compassionate Communities / Volunteers

Two 20-minute presentations, each followed by a 10-minute question period

A) When Volunteers Met AI: Transforming Volunteer Engagement Through the Power of the Volunteer Voice and Digital Technology

Morven MacLean, Will McLean, Children's Hospices Across Scotland, Glasgow, Scotland, United Kingdom

B) How Do I Start a Compassionate Community? We Have the Kit for You!

Bonnie Tompkins, Pallium Canada, Ottawa, ON, Canada

G10
PROFFERED PAPERS – Communication

A series of 15-minute presentations, each followed by a 5-minute question period

A) "Hoping for the Best and Preparing for the Worst" – Understanding the Needs of People Living with Treatable but not Curable Cancer and Developing Solutions for Choice and Support for People

Adrienne Betteley, Macmillan Cancer Support, London, United Kingdom

B) The Great Divide: Is What We Tell Our Patients Actually What They Hear? A Reflection on Our Practice

Heather Brander1,2, Michael MacKenzie1,2, Jeannie Kennedy1,2, Ron MacCormick1,2,3

1. St.Martha's Regional Hospital, Antigonish, NS, Canada
2. Nova Scotia Health Authority, Halifax, NS, Canada
3. Cape Breton Cancer Centre, Sydney, NS, Canada

G11
PROFFERED PAPERS – Whole Person Care

Three 15-minute presentations, each followed by a 5-minute question period

A) An Exploration of How Specialist Palliative Care Nurses Identify and Manage Patients with Existential Distress

Zara Fay1, Colm O'Boyle2

1. St Francis Hospice, Dublin, Ireland
2. Trinity College, Dublin, Ireland

B) Completing the Bucket List: Leveraging Telehealth in Palliative Care to Support Legacy-making and Dignity

Diane Portman, Sarah Thirlwell, Kristine A. Donovan, Moffitt Cancer Center, Tampa, FL, United States

C) Giving Voice to Patient and Family Palliative Experiences Through the Development of Digital Stories and Patient and Family Centered Care Strategies

Janice Hagel1, Bev Berg1, Aynharan Sinnarajah1,2

1. Alberta Health Services-Calgary Zone, Calgary, AB, Canada
2. University of Calgary, Calgary, AB, Canada

G12
PROFFERED PAPERS – Palliative Care in Long-Term Care

Three 15-minute presentations, each followed by a 5-minute question period

A) Advancing Palliative Care in Long Term Care Facilities (LTCFs) in Europe Within the PACE Project: An Innovative Educational and Development Intervention

Sheila Payne1, Katherine Froggatt1, Jo Hockley1, Danni Collingridge Moore1, Lieve van den Block2

1. Lancaster University, Lancaster, Lancashire, United Kingdom
2. Vrije Universiteit, Brussels, Belgium

B) Does Using the interRAI Palliative Care Instrument Reduce the Needs and Symptoms of Nursing Home Residents? A Quasi-experimental Pretest-posttest Study

Kirsten Hermans1,2, Joachim Cohen2, Nele Spruytte1, Anja Declercq1, Chantal Van Audenhove1

1. KU Leuven, LUCAS, Center for Care Research and Consultancy, Leuven, Belgium
2. Vrije Universiteit Brussel and University of Ghent, Brussels, Belgium

C) Death Acceptance Among Patients with Terminal Cancer

Ratchaneekorn Upasen, Sureeporn Thanasilp, Chulalongkorn University, Bangkok, Thailand

G13
PROFFERED PAPERS – Palliative Care in Developing Countries

Three 15-minute presentations, each followed by a 5-minute question period

A) The Changes, Challenges, and Coping Strategies of Men Living with Advanced Prostate Cancer in a Resource-poor Country

Yakubu Salifu1, Kathryn Almack2, Glenys Caswell1

1. University of Nottingham, Nottingham, United Kingdom
2. University of Hertfordshire, Hertfordshire, United Kingdom

B) Palliative Care During a Coup – Lessons from Zimbabwe

Beverley Sebastian, Island Hospice & Healthcare Zimbabwe, Harare, Zimbabwe

C) Patients' Experiences of Receiving Care During the End of Life in a Resource-poor Setting

Dalhat Sani Khalid1,2, Gina Higginbottom1, Christopher Bailey1

1. University of Nottingham, Nottingham, United Kingdom
2. Ahmadu Bello University, Zaria, Nigeria

G14
Présentations courtes – Sédation

Une série d’exposés de 15 minutes, chacun suivi d’une période de questions de 5 minutes

A) Sédation profonde et continue jusqu'au décès : de la terminologie des textes législatifs français à l'interprétation des professionnels de santé en France. Quelles appréhensions pratiques ?

Martyna Tomczyk1, Bénédicte Beviere-Boyer1, Marcel-Louis Viallard3, Sadek Beloucif2

1. UFR droit, Université Paris 8, France
2. Hôpital universitaire Avicenne, AP-HP, Université Paris XIII, Paris, France
3. Hôpital Universitaire Necker-Enfants-Malades, AP-HP, Paris, France

B) Place de la sédation continue lors d'un arrêt de dialyse en France: Questionnement sur une situation clinique

Adrien Evin, Katell Severin, Nicole Seïté, Francine Bazebialo, Hélène Gaillard, Gwenola Le Go, Aurélie Lepeintre, Julien Nizard, CHU de Nantes, Nantes, Loire-Atlantique, France

C) Surveillance optimale de la sédation palliative continue en fin de vie: Le projet SOS

Diane Tapp1,2, Diane Francoeur2

1. Université Laval, Québec, QC, Canada
2. Institut universitaire de cardiologie et de pneumologie de Québec-Université Laval, Québec, QC, Canada

15 h 30 – 16 h 00 – PAUSE

16 h 00 – 17 h 30

SOLLICITUDE ET COMPASSION EN ACTION

Lynna Chandra, fondatrice, Yayasan Rumah Rachel (Rachel House), Jakarta, Indonésie


Rachel House, le premier service de soins palliatifs pédiatriques d’Indonésie, a été conçu alors qu’il n’existait pas de programmes de ce genre ni de professionnels formés dans le pays. La conviction qu’aucun enfant ne devrait jamais vivre ou mourir dans la douleur, ainsi que la compassion ont présidé à la naissance de cet organisme – un accès équitable est sa raison d’être. Il est devenu une véritable source de compassion qui, au-delà des soins qu’il offre, rejaillit jusque dans les collectivités. Avec le développement du service, le défi sera de rester authentique et fidèle à la vision d’origine ainsi qu’à ses valeurs et principes directeurs.


LA COMPASSION COMME CLEF D’UN RENOUVEAU SPIRITUEL

Thupten Jinpa

, auteur reconnu et traducteur principal du Dalaï Lama; fondateur et président de l'Institut des classiques tibétains et de la Compassion Institute; professeur auxiliaire, philosophie bouddhiste tibétaine, Université McGill, Montréal, QC, Canada

Laurence Freeman, OSB, moine bénédictin; directeur, World Community for Christian Meditation, Londres, Royaume-Uni


Puisant à leurs traditions spirituelles respectives, le père Laurence et Thupten Jinpa engageront un dialogue approfondi sur la façon dont chacun peut se connecter à sa propre compassion intérieure comme clef de la résilience et du renouveau spirituel personnel – deux éléments essentiels pour ceux et celles qui oeuvrent en première ligne dans la prestation de soins intensifs. La compassion contribue à préserver la motivation du soignant ou de la soignante. Elle offre un point d’ancrage à son éthique personnelle et enrichit son sens du devoir, l’aidant ainsi à se prémunir contre le danger constant de l’épuisement émotionnel et de l’usure de la compassion. Se donner la permission de prendre soin d’autrui, c’est être en mesure de se reconnecter avec son humanité au plus profond de soi-même… avec la meilleure facette de la nature humaine. Le père Laurence et Thupten Jinpa proposeront des outils concrets pour mieux se connecter à notre sens de la compassion et le nourrir afin d’en faire une force agissante susceptible de guider nos vies.