Jeudi le 20 octobre 2016
07:00 – 08:00
Activités autothérapeutiques
07:45 – 08:45
Chair: Robin Cohen, McGill University, Montréal, QC, Canada
Discussant: Kenneth Pituch, University of Michigan Medical School, Ann Arbor, MI, United States
A) Predictors of Place of Death in Children Who Died After Discharge from Paediatric Intensive Care Units in England and Wales
Lorna Fraser1, Sarah Fleming2, Roger Parslow2
1. University of York, York, United Kingdom
2. University of Leeds, Leeds, United Kingdom
B) Predictors of and Trends in High-Intensity End-of-Life Care Among Children with Cancer: A Population-Based Study Using Health Services Data
Sumit Gupta1, 2, 3, Rinku Sutradhar2, Adam Rapoport1, Jason Pole4, Alisha Kassam5, Craig Earle2, Joanne Wolfe6, Kimberley Widger1, 3
1. Hospital for Sick Children, Toronto, ON, Canada
2. Institute for Clinical and Evaluative Sciences, Toronto, ON, Canada
3. University of Toronto, Toronto, ON, Canada
4. Pediatric Oncology Group of Ontario, Toronto, ON, Canada
5. Southlake Regional Health Centre, Newmarket, ON, Canada
6. Dana-Farber Cancer Institute, Boston, MA, United States
C) Barriers to Accessing Palliative Care for Structurally Vulnerable Populations
Kelli Stajduhar1, Ashley Mollison1, Ryan McNeil2, Bernadette Pauly1, Bruce Wallace1, Sheryl Reimer Kirkham3, Naheed Dosani4, 5, Caelin Rose6, 8, Kristen Kvakic8, 9,Danica Gleave7, 8,Caite Meagher7, 8,Grey Showler7, 8,Taylor Teal1,Carolyn Showler1,Kelsey Rounds1
1. University of Victoria, Victoria, BC, Canada
2. BC Centre for Excellence in HIV/AIDS, Vancouver, BC, Canada
3. Trinity Western University, Langley, BC, Canada
4. Palliative Education and Care for the Homeless, Inner City Health Associates, Toronto, ON, Canada
5. McMaster University, Hamilton, ON, Canada
6. Victoria Hospice, Victoria, BC, Canada
7. Cool Aid Community Health Centre, Victoria, BC, Canada
8. Palliative Outreach Resource Team, Victoria, BC, Canada
9. AIDS Vancouver Island, Victoria, BC, Canada
09:00 – 10:30
Chair : Bernard J. Lapointe, Eric M. Flanders Chair in Palliative Medicine, McGill University, Montréal, QC, Canada
(Presentations will be given in French)

LE DEUIL OUVRE UN CHEMIN QUE LA VIE SANS CHAGRIN NE CONNAÎT PAS

Johanne de Montigny, Psychologist, Montréal, QC, Canada

L’attachement profond et le « détachement aimant » tiennent d’une même fibre: la quête affective qui nous anime depuis la naissance jusqu’à la mort. Notre façon d’entrer en relation avec les autres, de vivre sainement la part de solitude que les séparations nous imposent, témoigne d’un aplomb psychologique particulièrement utile et favorable au moment de se dire un dernier adieu. En quoi la mort « de l’Autre » peut-elle influencer la signification de la nôtre?

LA DIGNITÉ

Eric Fiat, Deputy Director, Laboratoire Interdisciplinaire d'étude du politique / Hannah Arendt, Université de Paris-Est Marne-la-Vallée, France

Eric Fiat, philosophe, professeur des universités et membre de l’observatoire national de la fin de vie de France, ses réflexions éthiques portent sur les pratiques liées à la fin de vie et la dignité de la personne humaine. Concept à la fois vague et à la mode, la dignité est souvent instrumentalisée afin de justifier tout et son contraire. Employé à tort et à travers, le terme prête à confusion, confusion qu’Eric Fiat tente de lever en lui redonnant sa véritable « vocation », son sens.

10:30 – 11:00 – BREAK / PAUSE

CE QU'IL FAUT CHOISIR:


À 11 h, les participants peuvent assister soit au Séminaire spécial « Nouvelles tendances en recherche sur le deuil et en pratique de soutien » (D01, E01) qui se poursuit jusqu’à 15 h 30; ou choisir parmi plusieurs ateliers à 11 h (D02-D12), et à 14 h (E02-E12).

Organisateurs et co-présidents : Christopher MacKinnon, psychologue, Soins palliatifs, Centre universitaire de santé McGill, Montréal, QC, Canada et Johanne de Montigny, psychologue, Montréal, QC, Canada

Parrainé par Le repos Saint-François d'Assise

Ce séminaire réunit des voix réputées du domaine des études sur la mort. On y mettra en lumière des recherches sur le chagrin et on y discutera de programmes de soutien novateurs pour les personnes en deuil.

Cette activité de formation continue en psychothérapie est reconnue par l’Ordre des psychologues du Québec No de reconnaissance OPQ : RE01820-16; 6 heures reconnues en psychothérapie.

11:00 – 12:30

D01
ATELIER / PRÉSENTATION COURTE
Un atelier de 60 minutes et un exposé de 20 minutes suivi d’une période de questions de 10 minutes

A) Services de groupes thérapeutiques et de soutien pour les endeuillés : résultats empiriques et orientations futures (présenté en anglais)

Jason Holland, Assistant Professor, William James College, Newton, MA, United States

Les groupes d’appui aux endeuillés, encadrés par des conseillers professionnels ou non, sont de plus en plus courants. Toutefois, on ne dispose guère de travaux concluants sur leur efficacité. Cette présentation porte sur des stratégies d’animation efficaces pour des groupes d’endeuillés tirées de la littérature empirique existante.

B) L’outil interactif pour aborder les sentiments de perte et de deuil pour les patients et les familles du Portail canadien en soins palliatifs (présenté en anglais)

Shelly Cory1, Harvey Chochinov1,7, Christopher James Mackinnon2,3, Fred Nelson1, Eunice Gorman4, Darcy Harris4, Andrea Warnick5, Robert Neimeyer6, Bonnie Morris1, Sylvie Lalande1, Jacquie Dorge1, Nadine Gariepy-Fisk8, Susan Cadell9

  1. Canadian Virtual Hospice, Winnipeg, MB, Canada
  2. McGill University, Montréal, QC, Canada
  3. McGill University Health Center, Montréal, QC, Canada
  4. King’s University College, London, ON, Canada
  5. Andrea Warnick Consulting, Toronto, ON, Canada
  6. University of Memphis, Memphis, TN, United States
  7. University of Manitoba, Winnipeg, MB, Canada
  8. Hospice Calgary, Calgary, AB, Canada
  9. Renison University College, Waterloo, ON, Canada

14:00 – 15:30

E01
ATELIER / PRÉSENTATIONS COURTES
Un atelier de 45 minutes et deux exposés de 15 minutes, chacun suivi d’une période de questions de 5 minutes.

A) Diversité et intensité des effets d'un deuil : une première enquête globale française

(présenté en français)

Tanguy Châtel1, Damien Le Guay1, Thierry Mathe2, Anne Tourres3

  1. Comité national d'éthique du funéraire, La Celle Saint-Cloud, France
  2. CREDOC, Paris, France
  3. Chambre Nationale Syndicale de l'Art Funéraire (CSNAF), Paris, France

Une enquête inédite en France, quantitative et qualitative, évalue les effets pluriels et globaux du deuil : effets individuels (physiques, psychologiques, sociaux, spirituels, professionnels) et incidences collectives (coût sanitaire, économique, social, risques pour l’entreprise…).

B) Les complexités du deuil après un décès en soins palliatifs ou après un décès ayant nécessité la présence d’un coroner : conclusions préliminaires d’une étude longitudinale (présenté en anglais)

Jane Mowll1, Christine Sanderson1,2, Rod Macleod3, Matra Robertson3, Lawrence Lam4, Elisabeth Lobb1,2

  1. University of Notre Dame, Kogarah, NSW, Australia
  2. Calvary Health Care, Kogarah, NSW, Australia
  3. HammondCare, Sydney, NSW, Australia
  4. University of Technology, Sydney, NSW, Australia

C) Élaboration d’un programme de soutien aux endeuillés et de dépistage dirigé par un clinicien en USI destiné aux membres des familles de patients en USI (ICU BEREAVE) (présenté en anglais)

Ellen Koo1, Csilla Kalocsai2, Tasnim Sinuff2, Amanda Roze des Ordons3, Orla Smith4, Deborah Cook5, Eyal Golan1, Sarah Hales1, Derek Strachan1, Christopher MacKinnon6, James Downar1

  1. University Health Network, Toronto, ON, Canada
  2. Sunnybrook Health Sciences Centre, Toronto, ON, Canada
  3. University of Calgary, Calgary, AB, Canada
  4. St. Michael's Hospital, Toronto, ON, Canada
  5. McMaster University, Hamilton, ON, Canada
  6. McGill University, Montréal, QC, Canada

11:00 – 12:30
D01
SÉMINAIRE SPÉCIAL

« NOUVELLES TENDANCES EN RECHERCHE SUR LE DEUIL ET EN PRATIQUE DE SOUTIEN »

D02

The Way Forward: A Roadmap for an Integrated Palliative Approach to Care

Sharon Baxter, Leanne Kitchen Clarke, Louise Hanvey, Canadian Hospice Palliative Care Association, Ottawa, ON, Canada

The Way Forward (TWF), a three year Canadian catalyst initiative for communityintegrated hospice palliative care, launched a national framework to promote a palliative approach to care across all settings of care. TWF, the framework and the work of the advance care planning in Canada initiative will be highlighted and discussed.

D03
PROFFERED PAPERS – PEDIATRIC PALLIATIVE CARE

A series of 15-minute presentations, each followed by a 5-minute question period

A) Incorporating Good Patient, Parent, and Provider Definitions to Improve Care Interactions and Psychosocial Outcomes for Children with Cancer, Their Families, and Their Care Teams

Meaghann Weaver1, Tessie October2, Pamela Hinds2

  1. National Institutes of Health, Bethesda, MD, Unites States
  2. Children’s National Health System, Washington, DC, United States

B) Decision-making in Pediatric Oncology: Prospective Survey Study with Parents and Physicians

Michael Rost1, Tenzin Wangmo1, Felix Niggli2, Karin Hartmann3, Heinz Hengartner4, Marc Ansari5, Pierluigi Brazzola6, Johannes Rischewski7, Maja Beck-Popovic8, Thomas Kühne9, Bernice Elger1

1. University of Basel, Basel, Switzerland 2. University of Zurich, Zurich, Switzerland 3. Cantonal Hospital, Aarau, Switzerland 4. Ostschweizer Kinderspital, St. Gallen, Switzerland 5. Geneva University Hospital, Geneva, Switzerland 6. Ospedale Regionale di Bellinzona e Valli, Bellinzona, Switzerland 7. Children’s Hospital Lucerne, Lucerne, Switzerland 8. CHUV Lausanne, Lausanne, Switzerland 9. University of Basel Children’s Hospital UKBB, Basel, Switzerland

C) The Missing Stories of Palliative Patients, Parents and Physicians in Pediatric Oncology

Eva De Clercq, Tenzin Wangmo, Michael Rost, Bernice S. Elger, Institute for Biomedical Ethics, University of Basel, Basel, Switzerland

D) Quality of Palliative Care for Children with Cancer

Kimberley Widger1,2, Stefan Friedrichsdorf3, Joanne Wolfe4, Stephen Liben5, Jason D. Pole1,6, Eric Bouffet1,2, Mark Greenberg1,6, Amna Husain1,7, Harold Siden8, James A. Whitlock1,2, Adam Rapoport1,2

  1. University of Toronto, Toronto, ON, Canada
  2. Hospital for Sick Children, Toronto, ON, Canada
  3. Children’s Hospitals and Clinics of Minnesota, Minneapolis, MN, United States.
  4. Dana-Farber Cancer Institute, Boston, MA, United States
  5. The Montreal Children’s Hospital, Montréal, QC, Canada
  6. Pediatric Oncology Group of Ontario, Toronto, ON, Canada
  7. Mount Sinai Hospital, Toronto, ON, Canada
  8. Canuck Place Children's Hospice, Vancouver, BC, Canada

D04

Mayo Stress Management and Resiliency Training (SMART) Program

Amit Sood, Mayo Clinic, Rochester, MN, United States

Have you ever driven several miles without noticing anything on the road, or read a page in a book without registering any of it? Do the day's worries and disappointments crowd your mind as you're trying to fall asleep at night? Do you feel stressed much of the time and aren’t sure how to find peace? In this program, a specialist in stress and resiliency reveals how the mind’s instinctive restlessness and shortsightedness generate stress and anxiety and presents strategies for living a more peaceful life. Learn skills that will help you:

Develop deep and sustained attention
Practice gratitude, compassion and acceptance
Live a meaningful life
Cultivate nurturing relationships
Achieve your highest potential

All of these concepts are woven into a practical and fun journey that has been tested in numerous scientific studies, with consistently positive results.

D05

A) Supportive Cardiology: Early Integration of Palliative Care for Patients with Advanced Heart Failure

Warren Lewin3, Dorothy Sullivan1,2, Nina Horvath1,2, Archna Patel1,2, Shana Haberman1

  1. Freeman Centre for the Advancement of Palliative Care, North York General Hospital, Toronto, ON, Canada
  2. University of Toronto, Toronto, ON, Canada
  3. Icahn School of Medicine at Mount Sinai Hospital, New York, NY, United States
A hospital and clinic-based inter-professional partnership: what worked for us (and the pitfalls!). Join our interactive discussion to share ideas and lessons learned, and be guided in developing a successful supportive cardiology program.

B) Positive-Sum Game: Reconciling the Disparate Expertise of Cardiovascular and Palliative Care Professionals Dealing with Advanced Heart Failure

James M Beattie1, Piotr Sobański2

  1. Heart of England NHS Foundation Trust, Birmingham, United Kingdom
  2. Hildegard Palliative Center, Basel, Switzerland

This workshop will explore potential challenges and opportunities in synergizing cardiology and palliative care expertise to address the complex needs of those living and dying with advanced heart failure.

D06

Opioid Pharmacology: The Good, the Bad and the Ugly

Mellar Davis, Cleveland Clinic, Cleveland, OH, United States

This session will cover benefits of combining opioids, either engineered as bifunctional ligands or as opioid combinations. This session will also present the evidence for opioid induced hyperalgesia and propose that early use of adjuvants such as gabapentinoids in minimizing opioid pronociception.

D07
PROFFERED PAPERS – SPIRITUALITY

A series of 15-minute presentations, each followed by a 5-minute question period

A) Pastoral Care as an Integral Part of Palliative Care: First Steps in Israel

Carey Miriam Knight Berkowitz, Kashouvot and Hadassah Hospital, Jerusalem, Israel

B) The Development of the Palliative Care Spiritual Care Competency Scale

Ping-Hwa Chen1, Jeng-Fong Chiou2, Mei Chuan Chu1, Lan-Hsin Fan1, Kuo-Feng Chang1, Ran Zhao3

  1. National Taiwan Normal University, Taipei, Taiwan
  2. Taipei Medical University Hospital, Taipei, Taiwan
  3. National Taiwan University, Taipei, Taiwan

C) Foundations of Spiritual Care: Evaluation of a New Zealand Hospice Spiritual Care Programme

Rod MacLeod1,2, Richard Egan3, Tess Moeke-Maxwell4, Rachael Crombie5

  1. University of Sydney, Sydney, Australia
  2. HammondCare, Sydney, Australia
  3. University of Otago, Dunedin, New Zealand
  4. University of Auckland, Auckland, New Zealand
  5. Hospice New Zealand, Wellington, New Zealand

D) 'If I Didn’t Have my Spiritual Beliefs, I Would Struggle.': Exploring the Spiritual and Religious Beliefs of Workers in a Residential Aged Care Facility, in the Face of Death, Dying and Suffering in the Workplace

Helen Dick, University of Queensland, Uniting Church of Australia, Queensland Synod, UnitingCare Health, Brisbane, Australia; Charles Sturt University, Canberra, Australia; Presbyterian Church of Aotearoa New Zealand, Christchurch, New Zealand

D08
PROFFERED PAPERS – PALLIATIVE CARE IN HUMAN CRISES

Three 20-minute presentations, each followed by a 10-minute question period

A) Ebola Response in Sierra Leone: Issues and Challenges of Providing Palliative Care in Disaster Responses

Anna Voeuk, University of Alberta, Edmonton, AB, Canada

B) The Right of Peaceful Passage for the Victims of Violent Conflict

Geraldine Gorman, Stephanie Ezell, University of Illinois at Chicago, Chicago, IL, United States

C) The Place of Palliative Care in Humanitarian Response

Kevin Bezanson1,2, Elysée Nouvet3, Matthew Hunt4, Sonya de Laat3,5, Laurie Elit3,6,7, Carrie Bernard2,3,8, Lisa Schwartz3

  1. Temmy Latner Centre for Palliative Care, Mount Sinai Hospital, Toronto, ON, Canada
  2. University of Toronto, Toronto, ON, Canada
  3. McMaster University, Hamilton, ON, Canada
  4. McGill University, Montréal, QC, Canada
  5. Western University, London, ON, Canada
  6. Hamilton Health Sciences Centre, Hamilton, ON, Canada
  7. Juravinski Cancer Centre, Hamilton, ON, Canada
  8. Queen Square Family Health, Brampton, ON, Canada

D09
PROFFERED PAPERS – COMPASSIONATE COMMUNITIES

A series of 15-minute presentations, each followed by a 5-minute question period

A) The Last Aid Course – Teaching the Public About Palliative Care

Georg Bollig, University of Bergen, Bergen, Norway; HELIOS Klinikum Schleswig, Schleswig, Germany; Norwegian Palliative Association, Oslo, Norway

B) Empowering Communities Through Development of a Volunteer Facilitated ACP Public Workshop

Sue Grant1, Pat Porterfield1,2, Terry Webber1, Laura Spencer1, Rachel Carter1, Eman Hassan1,2, Doris Barwich1,2

  1. BC Centre for Palliative Care, New Westminster, BC, Canada
  2. University of British Columbia, Vancouver, BC, Canada

C) Walking Each Other Home: Weaving Informal Palliative Supports into a Community Garden

Pauline Marsh, University of Tasmania, Hobart, Australia

D) Feasibility of a Model of Volunteer Navigation (NCARE) to Support Older Adults Living at Home with Advanced Chronic Illness

Barbara Pesut1, Wendy Duggleby2, Grace Warner3, Konrad Fassbender2, Elisabeth Antifeau4, Lorraine Gerard5, Sharon Baxter6, Kathryn Downer7

  1. University of British Columbia, Kelowna, BC, Canada
  2. University of Alberta, Edmonton, AB, Canada
  3. Dalhousie University, Halifax, NS, Canada
  4. Interior Health, Kelowna, BC, Canada
  5. BC Hospice Palliative Care Association, Vancouver, BC, Canada
  6. Canadian Hospice Palliative Care Association, Ottawa, ON, Canada
  7. Pallium Canada, Ottawa, ON, Canada

D10
PROFFERED PAPERS – ETHICAL ISSUES

Three 20-minute presentations, each followed by a 10-minute question period

A) Behind Frenemy Lines:* Improving the Crucial Relationship Between Ethics and Palliative Care

Robert Macauley, University of Vermont College of Medicine, Burlington, VT, United States

B) A Humanist and Pragmatic Autonomy: The Konomie

Alain de Broca, University Hospital, Amiens, France

C) Addressing Muslim Patients' Palliative Care Needs in the Era of Assisted Death: Islamic Perspective on Palliative Sedation

Ahmed al-Awamer, University Health Network, University of Toronto,Toronto, ON, Canada

D11
ATELIER / PRÉSENTATIONS COURTES – ARTS ET HUMANITÉS

Un atelier de 45 minutes et deux exposés de 15 minutes, chacun suivi d’une période de questions de 5 minutes

A) Art - thérapie : douleurs et démences (présenté en français)

Claire Oppert1, Jean-Marie Gomas1, Patricia Cimerman2

  1. Hôpital Sainte Perine, Paris, France
  2. Centre National de Ressources de lutte contre la Douleur, Paris, France

Les séances d’art-thérapie musicale ont un impact positif massif sur la douleur et l'anxiété des patients hospitalisés en soins palliatifs lors de soins douloureux : étude clinique de 100 « Pansement Schubert ». Elles permettent également une préservation voire une récupération de certaines capacités résiduelles chez des sujets déments.

B) Derniers chapîtres : que lisent les personnes mourantes et que nous disent leurs choix? (présenté en anglais)

Ros Taylor, Hospice UK and Royal Marsden Hospital, London, United Kingdom; Hospice of St Francis, Berkhamsted, Hertfordshire, United Kingdom

C) L’exploration des objets en fin de vie (présenté en anglais)

Helena Kjellgren1,2, Carol Tishelman1,3, Alastair Macdonald4, Olav Lindqvist1,5, Ida Goliath1

  1. Karolinska Institutet, LIME, MMC, Stockholm, Sweden
  2. Ersta Sköndal University College, Palliative Research Centre, Stockholm, Sweden
  3. Karolinska University Hospital, Innovation Centre, Stockholm, Sweden
  4. The Glasgow School of Art, Glasgow, Scotland
  5. Umeå University, Umeå, Sweden

D12
ATELIERS : Regard sur deux expériences de soins en France

A) Québec-France : analyse comparée de l’organisation et des pratiques de soins palliatifs à domicile (présenté en français)

Michel L’Heureux1, Jocelyne Wullschleger2, Serge Dumont3, Vincent Morel4, Antoine Chapdelaine5, Tanguy Châtel6, Dominique Dion7, Sébastien Moine8, André-Philippe Lemieux1, Guy Jobin3, Véronique Turcotte9

  1. Maison Michel-Sarrazin, Québec, QC, Canada
  2. Fondation Diaconesses de Reuilly, Lille, France
  3. Université Laval, Québec, QC, Canada
  4. EMSP du CHU Rennes, Rennes, France
  5. Direction de santé publique de la capitale-nationale, Québec, QC, Canada
  6. Société française d'accompagnement et de soins palliatifs, La Celle Saint-Cloud, France
  7. Société de soins palliatifs à domicile du Grand Montréal, Montréal, QC, Canada
  8. MSP "Les Vignes de l'Abbaye", Saint Just en Chaussée, France
  9. ERMOS, Maison Michel-Sarrazin, Québec, QC, Canada

Maintien à domicile des personnes en soins palliatifs : une première étude croisée entre la France et le Québec met en évidence les différences de dispositifs, de contraintes et d’enjeux.

B) La présence de la famille au dernier souffle du malade en USP : fantasmes et réalités

E. Sales, A. Gantet, F. Knorreck, D. Tribout, M. Denis, M-A. Seveque, Jean-Marie Gomas, USP Hôpital Sainte Périne, Paris, France

Le « sens » de la fin de vie du patient est reflété par la date du décès, et par ce qui semble être le choix de son entourage au dernier souffle : ainsi sur 600 patients consécutifs , 76% décèdent SANS leur famille, même si les visites sont nombreuses.

12:50 – 13:50

PAUSE-MIDI

DÎNER DE RÉSEAUTAGE OPTIONNEL
12:50 – 13:50

Love in Our Own Time

Ce documentaire du réalisateur primé Tom Murray est consacré à la naissance, à l’amour et à la mort; il offre un espace propice à la réflexion et inspire des conversations portant sur l’enseignement et l’apprentissage.

14:00 – 15:30
CHOIX ENTRE LE SÉMINAIRE SPÉCIAL (E01) OU LES ATELIERS SIMULTANÉS (E02 – E12)
E01
SÉMINAIRE SPÉCIAL

« NOUVELLES TENDANCES EN RECHERCHE SUR LE DEUIL ET EN PRATIQUE DE SOUTIEN »

(Part 2)

E02
SYMPOSIUM

DE LA MÉDECINE PERSONNALISÉE ET DES SOINS AXÉS SUR LE PATIENT AUX SOINS CENTRÉS SUR LA PERSONNE

Deborah Dudgeon, Canadian Partnership Against Cancer, Toronto, ON, Canada;
Doreen Edward, Person-Centred Perspective Advisory Group, Canadian Partnership Against Cancer, Toronto, ON, Canada;
Gerald Batist, Department of Oncology, McGill University, Montréal, QC, Canada;

Sponsored by

Ce séminaire parrainé par le Partenariat canadien contre le cancer traitera des progrès réalisés en matière de médecine personnalisée, de leur portée et de leurs bienfaits pour les personnes atteintes de cancer, des besoins et des attentes des patients par rapport aux soins reçus, et enfin, de la nécessité que chacun d’entre nous opte pour un paradigme de soins axés sur la personne.

E03
PROFFERED PAPERS – PEDIATRIC PALLIATIVE CARE

A series of 15-minute presentations, each followed by a 5-minute question period

A) Who Is the Victim? A Systematic Review and Ethical Analysis of Moral Distress in Pediatric Intensive Care Units

Annie Janvier1, Trisha Prentice2, Lynn Gillian2, Peter Davis2

  1. Université de Montréal, Montréal, QC, Canada
  2. University of Melbourne, Melbourne, VIC, Australia

B) Death and Dying: A One Day Course to Enhance Pediatric Resident Education?

Sylvia Choi1,2, Scott Maurer1,2, Carol May2, Amanda Brown1

  1. University of Pittsburgh, Pittsburgh, PA, United States
  2. Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, United States

C) Le rôle de l'urgence dans les soins palliatifs pédiatriques

Anne-Josée Côté, Nathalie Gaucher, Antoine Payot, Université de Montréal, Montréal, QC, Canada

D) Multi-Disciplinary Pediatric End-of-Life Training Improves Staff Preparedness and Lessens Staff Distress

Kenneth Pituch1,2, Melanie Halsey2, Patricia Keefer1,2, James Azim1,2

  1. CS Mott Children’s Hospital, Ann Arbor, MI, United States
  2. University of Michigan, Ann Arbor, MI, United States

E04

A) The Politics of Programme Development

R. Rajagopal, Pallium India;Trivandrum Institute of Palliative Sciences Trivandrum, Kerala, India

Early development of palliative care in any country will need concurrent education, drug availability and policy (and its implementation). In the absence of a strong governance and management as in many countries, could we work on the social capital to improve palliative care access? And to facilitate government action?

E05

A) Building Capacity for Social Work Competencies in Hospice Palliative Care: SCOPE Curriculum

Zelda Freitas1, Patrick Durivage1, Sharon Baxter2

  1. CIUSSS du Centre-Ouest-de-l’Île-de-Montréal, CLSC René-Cassin, Côte Saint-Luc, QC, Canada
  2. Canadian Hospice Palliative Care Association, Ottawa, ON, Canada

The SCOPE-training modules based on social work competencies developed in association with Canadian Hospice Palliative Care will be presented. The application and integration of the modules will be highlighted by a group simulation. Participants will receive complementary access to the modules.

B) It Takes a Community: Learning Essential Approaches to Palliative and Endof-Life Care (LEAPing) in LTC

Kathryn Downer1, Jill Marcella1,2, Lori Teeple1,3

  1. Pallium Canada, Ottawa, ON, Canada
  2. Northwest LHIN Palliative Care, Thunder Bay, ON, Canada
  3. Western University, London, ON, Canada

LEAP LTC promotes care teams working together, acquiring tips and tools to engage residents and families in essential conversations, best practice care decisions, end-oflife priorities, grief and bereavement.

E06
PROFFERED PAPERS – CLINICAL ISSUES

A series of 15-minute presentations, each followed by a 5-minute question period

A) Caring for Patients with Ventricular Assist Devices on the Palliative Care Unit

Jonathan Pearce1,2, Caroline Baldwin1,2

  1. Providence Health Care, Vancouver, BC, Canada
  2. University of British Columbia, Vancouver, BC, Canada

B) Care for the Older Patient with Advanced Chronic Kidney Disease

Elizabeth Clark, Albert Einstein College of Medicine and Montefiore Medical Center, Bronx, NY, United States

C) Methadone4Pain.ca: An Evaluation of a New Online Course for Physicians Prescribing for Pain in Palliative Care

Cornelius Woelk1,5,8, Pippa Hawley2,3,8, Mike Harlos4,5,8, Dori Seccareccia6,8, Bruce Kennedy7, Marie-Claude Gregoire9,8, Karen Courtney3, Ken Stakiw8, Srini Chary10,8

  1. Boundary Trails Health Centre, Winkler, MB, Canada
  2. University of British Columbia, Vancouver, BC, Canada
  3. University of Victoria, Victoria, BC, Canada
  4. Winnipeg Regional Health Authority Palliative Care Program, Winnipeg, MB, Canada
  5. Canadian Virtual Hospice, Winnipeg, MB, Canada
  6. Sunnybrook Health Sciences Centre, Toronto, ON, Canada
  7. Fraser Health Authority, Surrey, BC, Canada
  8. Canadian Society of Palliative Care Physicians, Surrey, BC, Canada
  9. IWK Heath, Halifax, NS, Canada
  10. Pallium Canada, Ottawa, ON, Canada

D) Sleep Difficulties in Cancer Patients Receiving Palliative Care: A Descriptive Study

Marie Solange Bernatchez, Josée Savard, Hans Ivers, CHU de Québec-Université Laval Research Center, Université Laval, Québec, QC, Canada

E07

A) End of Life Care for Inuit Living in Nunavik, Quebec

Shawn-Renee Hordyk1, Martha Greig2, Mary Ellen Macdonald1, Paul Brassard1

  1. McGill University, Montreal, Quebec, Canada
  2. Nunavik Regional Health Board, Kuujjuaq, Quebec, Canada

This workshop outlines historical and current EOL care in Nunavik, Quebec, drawing on recent ethnographic research and a presentation by an Inuit frontline worker providing EOL care in Inuit communities.

B) Improving End-of-Life Care in First Nations Communities: Lessons Learned from a 5-year CIHR Research Project

Holly Prince1, Kevin Brazil2,3, Maxine Crow4, Verna Fruch6, Gaye Hanson1, Mary Lou Kelley1, Sharol Kohoko5, Jessica Koski1, Luanne Maki7, Lori Monture6, Chris Musquash1, Valerie O'Brien8, Kimberly Ramsbottom1, Jeroline Smith5, Melody Wawia1

  1. Lakehead University, Thunder Bay, ON, Canada
  2. McMaster University, Hamilton, ON, Canada
  3. Queens University, Belfast, Ireland, United Kingdom
  4. Naotkamegwanning First Nation, ON, Canada
  5. Six Nations of the Grand River, ON, Canada
  6. Peguis First Nation, MB, Canada
  7. Fort William First Nation, ON, Canada
  8. Six Nations Polytechnic, Ohsweken, ON, Canada

This workshop will present Canadian research about Indigenous perspectives on end of life and will share a model for developing local palliative care programs in First Nations communities.

E08
PROFFERED PAPERS – LEADERSHIP, POLICY AND PROGRAM DEVELOPMENT

Three 20-minute presentations, each followed by a 10-minute question period

A) Palliative Care Units (PCUs): Towards International Definitions and Standards for Tertiary-Level In-Patient Service Provision

Christopher Klinger1,2, José Pereira1,3,4, Lisa Malbrecht5, Kirsten Wentlandt6,7, Sara Urowitz6,8, Tara Walton8, Deanna Bryant8, Meena Chahal8, Henrique Parsons1,3

  1. University of Ottawa, Ottawa, ON, Canada
  2. Ottawa Hospital Research Institute, Ottawa, ON, Canada
  3. Bruyère Continuing Care, Ottawa, ON, Canada
  4. Bruyère Research Institute, Ottawa, ON, Canada
  5. St. Joseph’s Health Care London, London, ON, Canada
  6. University of Toronto, Toronto, ON, Canada
  7. University Health Network, Toronto, ON, Canada
  8. Ontario Palliative Care Network, Toronto, ON, Canada

B) A Whole Systems and Societal Approach to Pursue Excellence in Palliative Care in BC

Doris Barwich1,2, Kathleen Yue1,3, Eman Hassan1,2, Sue Grant1

  1. BC Centre for Palliative Care, New Westminster, BC, Canada
  2. University of British Columbia, Vancouver, BC, Canada
  3. University of Victoria, Victoria, BC, Canada

C) Developing National Palliative and End-of-Life Indicators to Monitor System Performance

Ruth Barker1,2, Margaret Fitch1,2, Deborah Dudgeon1,3, Esther Green1,2, Raquel Shaw-Moxam1

  1. Canadian Partnership Against Cancer, Toronto, ON, Canada
  2. University of Toronto, Toronto, ON, Canada
  3. Queens University, Kingston, ON, Canada

E09

A) How to Work in Palliative Care and Not Die Trying: The Transformation Process for Palliative Care Professionals, the Metamorphosis

Rafael Mota1, Vinita Mathani2, Maria Solano3, Borja Rivero3, Raquel Cabo4, Vicente Robles5

  1. Infanta Cristina Hospital Complex, Servicio Extremeño de Salud, Badajoz, Spain
  2. Hospital Nuestra Señora de la Candelaria, Canary Islands Health Care Services, Tenerife, Spain
  3. Palliative Care Regional Observatory, Extremadura, Mérida, Spain
  4. Asociación Española contra el Cáncer, Spain
  5. Virgen del Puerto Hospital, Plasencia, Extremadura, Spain

“How do you manage to do this for a living?” Palliative care professionals are frequently faced with how to deal with this question. A documentary called “Metamorphosis” shows the experience of some palliative care professionals from Spain.

B) Fostering Resilience Among Palliative Care and Hospice Providers

Marcos Montagnini1, Linda Blum2, Mark Heiland3

  1. University of Michigan, Ann Arbor, MI, USA
  2. California Pacific Medical Center, San Francisco, CA, USA
  3. Central Arkansas Veterans Healthcare System, North Little Rock, AR, USA

Stress and burnout are common among hospice and palliative care providers. The purpose of this workshop is to explore and promote the construct of resilience as it applies to interdisciplinary teams.

E10
PROFFERED PAPERS – DELIVERY OF CARE

A series of 15-minute presentations, each followed by a 5-minute question period

A) Primary Palliative Care Delivery Across Mayo Clinic

Cory Ingram2, Elizabeth L. Bechtum1,2, Jessica Brunner1,2, Karina M. Squire1,2, Erin A. Henderson2, Kate J. Larson2, Jennifer P. Schreiber2, Kari Bunkers2

  1. University of Minnesota, MN, United States
  2. Mayo Clinic, Rochester, MN, United States

B) Palliative Care Needs at Different Phases in the Illness Trajectory: A Survey Study in Patients with Cancer

Kim Beernaert1, Koen Pardon1, Lieve Van den Block1, Dirk Devroey3, Martine De Laat2, Karen Geboes2, Veerle Surmont2, Luc Deliens1, Joachim Cohen1

  1. Vrije Universiteit Brussel and Ghent University, Jette, Belgium
  2. Ghent University Hospital, Ghent, Belgium
  3. Vrije Universiteit Brussel, Jette, Belgium

C) Improving End-of-Life Care Through Quality Improvement

Kalli Stilos, Bill Ford, Danielle Takahaski, Tracey DasGupta, Sunnybrook Health Science Centre, Toronto, ON, Canada

D) Community Based Palliative Care for Older Patients

Franciscah Tsikai, Island Hospice Service, Belgravi, Harare, Zimbabwe

E11
PRÉSENTATIONS COURTES – CHOIX EN MATIÈRE DE SOINS DE FIN DE VIE

Une série d’exposés de 15 minutes suivis d’une période de questions de 5 minutes

A) Soins palliatifs et aide médicale à mourir : vers une coexistence pacifique ?

Alain Legault, Émilie Allard, Université de Montréal, Montréal, QC, Canada

B) Le temps résiduel en soins palliatifs

Natalie Harrison, François Gravelle, University of Ottawa, Ottawa, ON, Canada

C) Mettre le patient en mouvement : la kinésithérapie en soins palliatifs

Audrey Glon, Nathalie Denis, Benoit Maillard, Julien Nizard, CHU nord Laennec, Nantes, Pays de la Loire, France

D) Pertinence et modalités d’utilisation du MIDAZOLAM en intra nasal en soins palliatifs : à propos d’une revue de la littérature

Adrien Evin, Jérôme Libot, Nathalie Denis, CHU de Nantes, Nantes, Loire-Atlantique, France

E12

A) Les soins palliatifs doivent-ils changer leur philosophie? (présenté en français)

Pierre Deschamps, Lawyer, Montréal, QC, Canada

Traditionnellement, les soins palliatifs ont été définis comme des soins qui ne hâtent ni ne retardent la mort. Certains médecins de soins palliatifs se sont dits prêts à administrer l’aide médicale à mourir qui vise à provoquer la mort d’une personne. Doiton y voir là une contravention à la philosophie des soins palliatifs ou une pression pour en changer la philosophie?

B) L’évaluation de l’aptitude en fin de vie (présenté en français)

Annie Tremblay, CHU de Québec-UL, Pavillon Hôtel-Dieu de Québec, Québec,  QC, Canada (presented in French)

Les personnes en fin de vie sont confrontées à de nombreuses décisions. Les professionnels en soins palliatifs ont à collaborer activement à ces dernières. Cet atelier permettra de réviser la notion d’aptitude décisionnelle en contexte de soins palliatifs et d’en explorer les défis spécifiques à la fin de vie.

15:30 – 16:00 – BREAK / PAUSE

16:00 – 17:30
17:40 - 18:10
Un court intermède de poésie, de musique et d’images qui nous permettra de nous recueillir autour du souvenir de ceux et celles qui nous ont quittés.

Avec la participation de la violoncelliste française Claire Oppert.