Mercredi, 19 octobre 2016
07:00 – 08:00
Activités autothérapeutiques
08:30 – 10:00
Chair : Bernard Lapointe, Université McGil, Montréal, QC, Canada

L’IMPORTANCE DE LA MUSIQUE DANS NOS VIES

Kent Nagano, directeur musical, Orchestre Symphonique de Montréal, Montréal, QC, Canada


Comme l’a écrit Victor Hugo, « La musique exprime ce qui ne peut pas s'exprimer avec des mots et sur quoi il est impossible de se taire. » La musique joue un rôle fondamental dans nos vies, des berceuses de notre petite enfance aux chansons d’amour, ou au simple plaisir d’écouter Mozart ou les Beatles. La musique nourrit de fortes émotions et déclenche les souvenirs. Elle nous permet de jeter des ponts et d’entretenir des rêves d’espoir. Pour la séance plénière d’ouverture, maestro Kent Nagano, directeur musical de l’Orchestre symphonique de Montréal, dans un échange avec Louise Penny, écrivaine et aidante naturelle, nous entretiendra du rôle essentiel de la musique dans nos vies et dans les soins à nos patients.

ON PAIN: HISTORICAL REFLECTIONS

Joanna Bourke, professeure d’histoire, Department of History, Classics and Archaeology, School of Social Sciences, History and Philosophy, Birkbeck College, University of London, Londres, Royaume-Uni


La douleur a une histoire. L’expérience de la douleur n’apparaît pas naturellement à la suite de processus physiologiques, mais toujours en négociation avec des mondes sociaux. À ce titre, elle se constitue et se reconstitue historiquement et en relation avec des interactions sociales, environnementales et langagières, et dans des comportements corporels. Au cours de cette plénière, nous allons nous intéresser aux différents moyens par lesquels les gens ont tenté de communiquer leur douleur du 18e siècle à aujourd’hui.

10:00 – 11:00 – PAUSE et PARCOURS D’AFFICHES 

11:00 – 17:00

CE QU'IL FAUT CHOISIR

À 11 h, les participants peuvent assister soit au Séminaire spécial « L’ABC des soins infirmiers palliatifs » (A01/B01/C01), ou au Séminaire spécial « Pharmacothérapie en soins palliatifs » (A02/B02/C02), qui se poursuivent tous jusqu’à 17 h; ou choisir parmi plusieurs ateliers à 11 h (A03-A12), à 14 h (B03-B12) et à 16 h (C03-C12).

Organisateurs et co-présidents :
Vasiliki Bitzas, Hôpital général juif, Montréal, QC, Canada;
Maryse Bouvette, Soins continus Bruyère, Ottawa, ON, Canada; et
David Wright, Université d’Ottawa, Ottawa, ON, Canada

Série de présentations qui mettent en lumière la valeur fondamentale des soins infirmiers palliatifs en milieu de soins intensifs, comme «voix» des patients lorsque les objectifs de soins changent, et comme facilitateurs clés de la communication

11:00 – 12:30

A01  
A=>F
F=>A

A) L’intégration des soins palliatifs et de fin de vie A01 dans une unité de soins intensifs (présenté en français)

Lise Fillion, Université Laval, Québec, QC, Canada

B) Soins infirmiers aux mourants en USI

(présenté en anglais)

David Wright, Université d’Ottawa, Ottawa, ON, Canada
Brandi Vanderspank-Wright, Université d’Ottawa, Ottawa, ON, Canada

14:00 – 15:30

B01  
A=>F

A) Transfert aux soins palliatifs : B01 expériences vécues par des patients hospitalisés

(présenté en anglais)

Vasiliki (Bessy) Bitzas, Hôpital général juif-SMBD, Montréal, QC, Canada

B) Améliorer le tranfert de responsabilités entre membres du

(présenté en anglais)

Victoria McLean1, , Slawomir Zulawnik1, Fred Parmanand1,2

1. St. Michael's Hospital, Toronto, ON, Canada
2. Bridgepoint Sinai Health System, Toronto, ON, Canada

C) Le décès d’un patient pour le personnel infirmier : B01 une description interprétative

(présenté en anglais)

Christy Konietzny1, Sharon Kaasalainen1, Jenny Ploeg1, Nancy Carter1, Lori Schindel Martin2

1. McMaster University, Hamilton, ON, Canada
2. Ryerson University, Toronto, ON, Canada

16:00 – 17:00

C01

A) « Le soi thérapeutique », un outil de communication en C01 constante évolution

(presented in French)

Maryse Bouvette, Soins continus Bruyère, Ottawa, ON, Canada

Présidente: Andrée Néron, Centre hospitalier de l'Université de Montréal, Hôpital Notre-Dame, Montréal, QC, Canada
Organisatrice: Bonica Orng, Centre universitaire de santé McGill , Montréal, QC, Canada

Le soulagement efficace des symptômes en soins palliatifs demeure un défi pour le personnel soignant qui cherche à assurer le confort optimal des patients. Ce séminaire offrira une série de présentations par des experts réputés qui traiteront des recherches les plus récentes sur la compréhension de la douleur et sur les enjeux actuels en matière d’options de traitements.

Cette activité de formation continue a été accréditée par l'Ordre des pharmaciens du Québec qui accordera 12.00 UFC aux pharmaciens qui auront assisté à l'ensemble du programme.

11:00 – 12:30

A02

Mettre de côté certains médicaments dans le cas de maladies avancées

Mary Lynn McPherson, University of Maryland School of Pharmacy, Baltimore, MD, États-Unis

Aux patients atteints de maladies graves, on prescrit souvent des médicaments que l’on pourrait juger futiles ou irrationnels. Les participants à cette présentation vont être informés d’une démarche systématique permettant d’évaluer les bienfaits et les implications négatives de certaines médications dans des cas de maladies avancées, et de recommander des stratégies d’abandon de médicaments qui ne sont plus nécessaires.

14:00 – 15:15

B02

Gestion de la douleur dans la population gériatrique

David Lussier, Université de Montréal et Institut universitaire de gériatrie de Montréal, Montréal, QC, Canada

Examen des changements pharmacologiques associés au vieillissement, en plus de conseils pratiques sur la façon de prescrire divers analgésiques à des patients plus âgés en vue d’obtenir la maîtrise appropriée de la douleur et moins d’effets indésirables.

15:45 – 17:00

C02

Usage thérapeutique du cannabis

Mark Ware, Alan Edwards Pain Management Unit, Université McGill, Montréal, QC, Canada

L’usage médical du cannabis est un sujet d’intérêt marqué pour le public comme pour les professionnels des soins de santé. Cette séance sur ce sujet controversé permettra de passer en revue certaines des questions auxquelles les cliniciens travaillant en soins palliatifs vont être confrontés, mais également les possibilités offertes.
11:00 – 12:30
CHOIX ENTRE LES SÉMINAIRES SPÉCIAUX (A01 ou A02) OU LES ATELIERS SIMULTANÉS (A03 – A12)
A01
SÉMINAIRE SPÉCIAL

L’ABC DES SOINS INFIRMIERS PALLIATIFS

(1re partie)

A02
E=>F
SÉMINAIRE SPÉCIAL

PHARMACOTHÉRAPIE ET SOINS PALLIATIFS

(1re partie)

A03
PROFFERED PAPERS – PEDIATRIC PALLIATIVE CARE

A series of 15-minute presentations, each followed by a 5-minute question period

A) A Complex Palliative Care Journey: A Qualitative Investigation of the Death of One Twin in the Perinatal Period

Sarah Meaney1, Paul Corcoran1, Keelin O'Donoghue2

1. National Perinatal Epidemiology Centre, University College Cork, Cork, Ireland
2. University College Cork, Cork, Ireland

B) The Spiritual Challenge of Perinatal Bereavement

Daniel Nuzum1, 2, Sarah Meaney3, Keelin O'Donoghue1, 2

1. University College Cork, Cork, Ireland
2. Cork University Maternity Hospital, Cork, Ireland
3. National Perinatal Epidemiology Centre, University College Cork, Cork, Ireland

C) Only You Would Know: Bereaved Parent Volunteers Offering Support to Recently Bereaved Parents

Lori Malazich1, Carol May1, Scott Maurer1, 2

1. Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, United States
2. University of Pittsburgh, Pittsburgh, PA, United States

D) The End-of-Life Spiritual Care Service Package in the Newborn Intensive Care Unit(s)

Marzieh Hasanpour1, Narges Sadeghi2, Mohamad Heidarzadeh3, 4

1. Tehran University of Medical Sciences,Tehran, Iran
2. Islamic Azad University, Isfahan, Iran
3. Tabriz University of Medical Sciences, Tabriz, Iran
4. Ministry of Health, Treatment and Medical Education, Tehran, Iran

A04

A) When the Personal Meets the Professional and How Music Can Help

Viv Lucas1, Bob Heath1, 2

1. Garden House Hospice, Letchworth Garden City, Hertfordshire, United Kingdom
2. Maggie's Centre, Cheltenham, Gloucestershire, United Kingdom

A palliative care physician works with a music therapist to explore the use of creative song writing in supporting the care of patients and those that care for them.

B) Awakening Empathy: Using Sociodrama in Communication Training

Katie Neuendorf, Flannery Fielding, Center for Excellence in Healthcare Communication, Cleveland Clinic, Cleveland, OH, United States

This workshop allows participants to deepen their empathetic perspective while practicing sociodrama skills, such as doubling and role-reversal. A comprehensive debrief will highlight the rationale for these methods in communication skills training.

A05

A) How Do We Keep Volunteers Smiling? Exploring Supportive Strategies for the Palliative Care Team

Patrick Durivage11, Anna Feindel2, Zelda Freitas1, 2, Isabelle Van Pevenage1, members of the Council on Palliative Care2

1. CREGES, CIUSSSS Centre-Ouest-de-l'Ile-de-Montréal, Montréal, QC, Canada
2. Conseil des soins palliatifs, Université McGill, Montréal, QC, Canada

This workshop is intended for volunteers, coordinators and interdisciplinary teams. In subgroups, participants will exchange on issues related to the management of volunteers: recruitment, selection, training, supervision, evaluation and retention. A self-care exercise will conclude this workshop.

B) Dying Is Social: Lessons from the Volunteers in the Pallium India Model

Grace Taylor3, Ann Broderick2, Joann Eland2, M.R. Rajagopal1

1. Pallium India, Thiruvananthapuram, Kerala, India
2. University of Iowa, Iowa City, IA, United States
3. Harvard University, Cambridge, MA, United States

Pallium volunteers provide a social framework for patients and providers, sometimes performing tasks of nurses or social workers. Can this model bring dying from an institutional to a social context?

A06
PROFFERED PAPERS – EDUCATION

Three 20-minute presentations, each followed by a 10-minute question period

A) Memorable Learning and Professional Identity Formation in Palliative Care: A Study of Canadian Family Medicine Residents

Frances Kilbertus1, Rola Ajjawi2, Douglas Archibald3

1. Northern Ontario School of Medicine, Thunder Bay, ON, Canada
2. University of Dundee, Dundee, Scotland
3. University of Ottawa, Ottawa, ON, Canada

B) New Directions in Communication Skills Training for Palliative Care Fellow-Physicianss

Stéfanie Gingras1, Christopher J. MacKinnon1, 2, Sonia Skamene1

1. McGill University Health Center, Montréal, QC, Canada
2. McGill University, Montréal, QC, Canada

C) Towards Skilled Feedback on Challenging Conversations – A Simulation-Based Faculty Workshop

Amanda Roze des Ordons1, Jonathan Gaudet1, Adam Cheng1, James Downar2

1. University of Calgary, Calgary, AB, Canada
2. University of Toronto, Toronto, ON, Canada

A07

A) Using a Social Determinants of Health (SDOH) Approach in the Provision of Palliative Care

Blair Henry1, 2, Naheed Dosani3, 4, 5, Lise Huyhn1

1. Sunnybrook Health Sciences, Toronto, ON, Canada
2. University of Toronto, Toronto, ON, Canada
3. William Osler Health System, Brampton, ON, Canada
4. Palliative Education and Care for the Homeless, Toronto, ON, Canada
5. McMaster University, Hamilton, ON, Canada

Underserved populations experience a disproportionate decrease in access to all health resources in spite of poorer health outcomes and some would argue, higher need. Enhanced education and understanding of the impact that social determinant of health can have on access needs to be addressed. This workshop aims to identify the impact SDOH have on palliative care services itself and to introduce an assessment tool, designed specifically with palliative care in mind, to assist clinicians in proactively assessing barriers and biases and providing patients with resources for self-advocacy and support.

B) Goals of Care and Advance Care Planning Initiative in the Cancer Care Setting

Louise Hanvey1, Savanah Ashton1, Ruth Barker2, Mireille Lecours3, Tara Carpenter-Kellett4, Christine Power5, Robin Urquhart6

1. Canadian Hospice Palliative Care Association, Ottawa, ON, Canada
2. Canadian Partnership Against Cancer, Toronto, ON, Canada
3. Health PEI, Charlottetown, PEI, Canada
4. Cancer Care Manitoba, Winnipeg, MB, Canada
5. Eastern Health, St John's, NL, Canada
6. Cancer Care Nova Scotia, Halifax, NS, Canada

This workshop will explore the work of a new partnership between the Canadian Partnership Against Cancer, the Canadian Hospice Palliative Care Association and four provinces in Canada – Manitoba, Prince Edward Island, Newfoundland and Labrador and Nova Scotia – in launching goals of care and advance care planning policies and programs.

A08
PROFFERED PAPERS – COMMUNICATION

A series of 15-minute presentations, each followed by a 5-minute question period

A) Professional Nursing Boundaries: When Therapeutic Care Is in Question

Rose DeAngelis, The West Island Palliative Care Residence, Kirkland, QC, Canada

B) Exploring Communication at the End of Life

Laura Lewis1, Eunice Gorman1, Andrew Feron2

1. King's University College, London, ON, Canada
2. Parkwood Hospital, London, ON, Canada

C) Attitudes of Cancer Patients and Families Toward Advanced Directives

Hui-ping Chen1, Jin-xiang Li1, Yu jiang2, Chuan Zhang1, Fan Zhang1, Lan Huang1, Wei Peng1

1. West China Fourth Hospital of Sichuan University, Chengdu, Sichuan, China
2. West China Hospital of Sichuan University, Chengdu, Sichuan, China

D) Perceptions of Palliative Care in Advanced Cancer: Do They Influence Receipt of Quality End-of-Life Care?

Anna Collins1, 2, Sue-Anne McLachlan3, Jennifer Philip1, 2

1. Centre for Palliative Care, St Vincent's Hospital Melbourne, Melbourne, VIC, Australia
2. University of Melbourne, Melbourne, VIC, Australia
3. St Vincent’s Hospital Melbourne, Melbourne, VIC, Australia

A09
PROFFERED PAPERS – TECHNOLOGY SUPPORTING CULTURALLY RESPECTFUL CARE

Three 20-minute presentations, each followed by a 10-minute question period

A) LivingMyCulture.ca: New Online Tool to Support Culturally Safe Care

Shane Sinclair1, 2, Glen Horst1, Mei Lan Fang7, Romayne Gallagher1, 6, Judith Sixsmith4, 7, Kelli Stajduhar3, Karen Courtney3, Shelly Cory1, Bejoy Thomas5, Vivian Collacutt5, Sandy Kwong8, Ingrid See10, Sheryl Reimer-Kirkham9

1. Canadian Virtual Hospice, Winnipeg, MB, Canada
2. University of Calgary, Calgary, AB, Canada
3. University of Victoria, Victoria, BC, Canada
4. University of Northampton, Northampton, United Kingdom
5. Alberta Health Services, AB, Canada
6. Providence Health, Vancouver, BC, Canada
7. Simon Fraser University, Vancouver, BC, Canada
8. BC Cancer Agency, Vancouver, BC, Canada
9. Trinity Western University, Langley, BC, Canada
10. Vancouver Home Hospice Palliative Care Service, Vancouver, BC, Canada

B) Indigenous Voices: New Online Tools to Enhance Competencies for Providing Culturally Safe Care

Shelly Cory1, 2, Kali Leary2, Brenda Hearson1Carrie Bourassa3, Elder Betty McKenna1, 3, Verna Fruch5, Lori Monture5,Mary Lou Kelley6,Jeroline Smith7, Sherol Kohoko7, Audrey Logan8, Donna Loft10, Phillippa Martee9, Laurie Nicholas4

1. Canadian Virtual Hospice, Winnipeg, MB, Canada
2. CancerCare Manitoba, Winnipeg, MB, Canada
3. First Nations University, Regina, SK, Canada
4. MaWiw Council of First Nations, Fredericton, NB, Canada
5. Six Nations of the Grand River, ON, Canada
6. Lakehead University, Thunder Bay, ON, Canada
7. Peguis First Nation, MB, Canada
8. Windsor Regional Hospital, Windsor, ON, Canada
9. Baker Lake Hospice Society, Baker Lake, NU, Canada
10. Chiefs of Ontario, Toronto, ON, Canada

C) Offering 'High-Tech, High Touch' Culturally Respectful Care: A Pilot Telepalliative Care Project in Rural Alaska

Christopher Piromalli1, Stacy Kelley2, Matthew Olnes2, Christine DeCourtney2

1. Alaska Native Medical Center, Anchorage, AK, United States
2. Alaska Native Tribal Health Consortium, Anchorage, AK, United States

A10
PROFFERED PAPERS – HOME CARE

A series of 15-minute presentations, each followed by a 5-minute question period

A) A Good Enough Death?

Roderick MacLeod1, 2, Cheryl Johnson1, Victoria Coates1, Gretel Kemp1

1. HammondCare, Sydney, NSW, Australia
2. University of Sydney, Sydney, NSW, Australia

B) Navigating Conflicting Values in Palliative Home Care

Susan McClement1, 2, Marie Edwards1, Elizabeth Peter3, Kerstin Roger1

1. University of Manitoba, Winnipeg, MB, Canada
2. Manitoba Palliative Care Research Unit, Winnipeg, MB, Canada
3. University of Toronto, Toronto, ON, Canada

C) A Palliative Care Home Support Program in New South Wales (NSW), Australia – Design and Evaluation

Roslyn Poulos2, Roderick Macleod1, 3, Damian Harkin1, Andrew Cole1, 2, Christopher Poulos1, 2

1. HammondCare, Sydney, NSW, Australia
2. University of New South Wales, Sydney, NSW, Australia
3. University of Sydney, Sydney, NSW, Australia

D) Better Access to Palliative Care: The Australian Hospice@HOME Program with Global Implications

Fiona Onslow, Kim Macgowan, Emma Curnin, Hobart District Nursing Service Inc., Moonah, Tasmania, Australia

A11
PROFFERED PAPERS – ADVANCE CARE PLANNING

A series of 15-minute presentations, each followed by a 5-minute question period

A) Swe-ACP: Developing and Testing Tools for Structured Conversations About Values and Priorities for Future End-of-Life Care

Olav LIndqvist1, 2, Carol Tishelman1, 3, Malin Henriksson1, 4

1. Karolinska Institutet, Stockholm, Sweden
2. Umeå University, Umeå, Sweden
3. Karolinska University Hospital, Stockholm, Sweden
4. Luleå University, Luleå, Sweden

B) From Knowledge-to-Action: A Synthesis of Barriers and Facilitators to Advance Care Planning Policy Implementation Across a Healthcare System

Jessica Simon1, Marta Shaw1, Patricia Biondo1, Jayna Holroyd-Leduc1, Sara Davison2, Eric Wasylenko1, Sunita Ghosh2, Jonathan Howlett1, Lauren Hutchinson3, Reanne Booker3, Nancy Marlett1, Shelley Raffin1, Konrad Fassbender2, Neil Hagen1

1. University of Calgary, Calgary, AB, Canada
2. University of Alberta, Edmonton, AB, Canada
3. Alberta Health Services, AB, Canada

C) Identification of Indicators to Monitor Successful Implementation of Advance Care Planning Policies in Alberta: A Delphi Study

Konrad Fassbender1, Jayna Holroyd-Leduc3, Patricia Biondo3, Malcena Stalker2, Alex Potapov2, Eric Wasylenko4, Max Jajszczok4, Jessica Simon3, Neil Hagen3

1. Covenant Health Palliative Institute, Edmonton, AB, Canada
2. University of Alberta, Edmonton, AB, Canada
3. University of Calgary, Calgary, AB, Canada
4. Alberta Health Services, Calgary, AB, Canada

D) Project to Improve Quality of Death and Dying for Patients in a University Hospital

Juli Moran, Sarah Charlton, Daryl Jones, Austin Health, Heidelberg, VIC, Australia

A12
PRÉSENTATIONS COURTES – SOINS PALLIATIFS AU CONGO

Une série d’exposés de 15 minutes suivis d’une période de questions de 5 minutes

A) La valeur probante d’un testament oral du patient en soins palliatifs après sa mort, réalités à Kinshasa

Jean Sampert Makassi Kitapindu-Kimweti, ASBL Palliafamilli, Kinshasa, Kinshasa, RD Congo


B) Soins palliatifs chez les Personnes Vivants avec le VIH(PVV) en situation pénitentiaire, nécessite d’une formation professionnelle. Point de vue d’un juriste congolais

Alain Kabemba Mbaya, Damas Kasonga Kananga, Pallia Familli, Kinshasa, Kinshasa, RD Congo


C) RDC: les soins palliatifs, une dynamique communautaire

René Lukoji Kalonji, Pallia Familli, Barreau de Kinshasa, Gombe, Kinshasa, RD Congo


D) Expérience de la clinique psy dans la prise en charge des patients palliatifs à Kinshasa

Etienne Yuma1, 2, 3, 4, Jean-Claude Mukanzo4, Augustin Mamba4, Timothée Kamanga4

1. Pallia Familli, Kinshasa, RD Congo
2. Institut Supérieur des Techniques Médicales d'Ipamu, Mangai, Kwilu, RD Congo
3. Institut Supérieur des Techniques Médicales de Kinshasa, Kinshasa, RD Congo
4. Cliniques Psy, Kinshasa, RD Congo

12:30 – 14:00
LUNCH BREAK / PAUSE-MIDI
DÎNER DE RÉSEAUTAGE OPTIONNEL
12:40 – 13:50

Lecture théâtrale : Philoctetes de Sophocles* (présenté en anglais)

La compagnie théâtrale new-yorkaise Outside the Wire présente une lecture de Philoctète, du dramaturge grec Sophocle, en introduction à une discussion publique ouverte sur les défis auxquels font face les collectivités, les patients, le personnel soignant et les professionnels de la santé qui travaillent dans les domaines des soins palliatifs, de la gériatrie, des établissements d’accueil et des soins infirmiers. Offrant une perspective antique sur des enjeux médicaux contemporains, des scènes tirées de la pièce vont mettre en lumière des situations chargées d’émotions et complexes sur le plan éthique impliquant des patients en souffrance et des prestataires de soins déchirés. La lecture sera suivie d’une discussion

Modérateurs: Suzanne O'Brien, L’espoir, c’est la vie, Hôpital général juif, Montréal
Balfour Mount, Professeur émérite de médecine palliative, Université McGill, Montréal

Parrainée par L’espoir, c’est la vie et Soins palliatifs McGil.

13:00 – 13:50

Negotiating a ‘Good Enough’ Death in Acute Care
L03 Contexts: Implications for Students in Palliative Care (présenté en anglais)

Marian Krawczyk, Centre for Health Evaluation and Outcome Sciences, St. Paul’s Hospital, Vancouver, BC, Canada

Forum consacré aux résultats de recherches sur les écarts entre l’idéal et la réalité dans la prestation de soins palliatifs actifs et la recherche dans ce domaine. L’accent sera mis sur les besoins et les priorités des étudiants qui entreprennent de la recherche de deuxième cycle et des programmes de formation professionnelle en soins palliatifs.

14:00 – 15:30
CHOIX ENTRE LES SÉMINAIRES SPÉCIAUX (B01 ou B02) OU LES ATELIERS SIMULTANÉS (B03 – B12)
B01
SÉMINAIRE SPÉCIAL

L’ABC DES SOINS INFIRMIERS PALLIATIFS

(2e partie)

B02
E=>F
SÉMINAIRE SPÉCIAL

PHARMACOTHÉRAPIE ET SOINS PALLIATIFS

(2e partie)

B03
PROFFERED PAPERS – PEDIATRIC PALLIATIVE CARE

A series of 15-minute presentations, each followed by a 5-minute question period

A) 'But Wait, There’s More!' Courageous Parents Network (CPN), the Digital Ginsu Steak Knife of Pediatric Palliative Care

Patricia O’Malley1,2,3, Blyth Lord3

1. Harvard Medical School, Boston, MA, United States
2. Massachusetts General Hospital for Children, Boston, MA, United States
3. Courageous Parents Network, Newton, MA, United States

B) Tensions at the End of Life in Pediatrics: Actors, Causes, Coping Strategies and Remedies

Antoine Payot, Marie-Anne Archambault-Grenier, Marie-Hélène Roy-Gagnon, Nago Humbert, Sanja Stojanovic, Annie Janvier, Michel Duval, University of Montréal, Montréal, QC, Canada

C) Maintaining Professional Boundaries: Lessons from “Best Practice” Health Care Providers

Betty Davies1,7, Rose Steele2, Guenther Krueger3, Susan Albersheim4, Harold Siden4, Susan Cadell5, Caron Strahlendorf4, Jennifer Baird6

1. University of Victoria, Victoria, BC, Canada
2 York University, Toronto, ON, Canada
3. Child and Family Research Institute, Vancouver, BC, Canada
4. Children’s and Women’s Health Centre of British Columbia, Vancouver, BC, Canada
5. Renison University College - University of Waterloo, Waterloo, ON, Canada
6. Boston Children’s Hospital, Boston, MA, United States
7. University of California San Francisco, San Francisco, CA, United States

D) What Do We Know About Pediatric Palliative Care Patients Who Consult the Emergency Department?

Nathalie Gaucher, Nago Humbert, France Gauvin, CHU Sainte-Justine, Montréal, QC, Canada

B04

Evidence-based Treatment of Breathlessness in Palliative Care

David Currow, Flinders University, Adelaide, Australia

Breathlessness is highly prevalent in palliative care. The evidence base to treat it continues to develop. This workshop will consider the pharmacological and health services interventions that are demonstrating benefits for patients.

B05

A) Enhancing Communication Skills in Palliative Care: Employing Carrots Rather Than Sticks

Elaine Stevens1, Elizabeth Clark2,3, Bridget Johnston4, Sharon Ruckley5

1. University of the West of Scotland, Paisley, Scotland
2. Montefiore Medical Center, Bronx, NY, United States
3. Albert Einstein College of Medicine Bronx, Bronx, NY, USA
4. University of Nottingham, Nottingham, England
5. Provincial Integrated Palliative Care Programme, Charlottetown, PEI, Canada

This interactive workshop will appeal to anyone interested in communication skills training. Facilitators will discuss issues that prevent the enhancement of communication skills before solutions to the challenges are offered.

B) New Frontiers in Communication Skills Education

Elizabeth Clark1,2, Elaine Stevens3, Bridget Johnston4, Marcos Montagnini5,6, Sharon Ruckley7

1. Montefiore Medical Center, Bronx, NY, United States
2. Albert Einstein College of Medicine, Bronx, NY, United States
3. University of West Scotland, Paisley, Scotland, United Kingdom
4. The University of Nottingham, Nottingham, United Kingdom
5. University of Michigan Medical School, Ann Arbor, MI, United States
6. VA Ann Arbor Healthcare System, Ann Arbor, MI, United States
7. Provincial Palliative Care Centre, Charlottetown, PEI, Canada

This workshop will present several innovative programs to teach palliative care communications skills that can be used with a range of learners in a variety of clinical settings

B06
PROFFERED PAPERS – CLINICAL ISSUES

Three 20-minute presentations, each followed by a 10-minute question period

A) The Transplant Palliative Care Clinic: An Early Palliative Care Model for Patients in a Transplant Program with Non-Malignant Disease

Kirsten Wentlandt1,2, Ebru Kaya11,2

1. University of Toronto, Toronto, ON, Canada
2. University Health Network, Toronto, ON, Canada

B) The Prevalence and Intensity of People’s Physical Symptoms at the Time That Dying Was Diagnosed: A Prospective Cohort Study

Katherine Clark1,2, Alanna Connolly3, Sabina Clapham3, Karen Quinsey3, David Currow4

1. Calvary Mater Newcastle, Waratah, NSW, Australia
2. The University of Newcastle, Newcastle, NSW, Australia
3. University of Wollongong, Wollongong, NSW, Australia
4. Flinders University, Adelaide, SA, Australia

C) Symptomatology of Cancer Related Fatigue and impact on Quality of Life in Patients on Palliative Care in a Tertiary Cancer Institute: A Prospective Observational Study

Arunangshu Ghoshal, Anuja Damani, MaryAnn Muckaden, Tata Memorial Centre, Mumbai, India

B07

A) Applying Balint Work in Palliative Care

Rotem Tellem1, Jeffrey L. Sternlieb2, Nicky Quinlan3

1. Tel Aviv Medical Center, Tel Aviv, Israel
2. Lehigh Valley Health Network, PA, United States
3. On Lok Lifeways PACE, San Jose, CA, United States

Balint is a unique reflective method focused on the relationship between providers and patients. The workshop explores its concepts, allows firsthand Balint experience and describes Balint implementation in palliative care.

B) Building the Future of Palliative Care: Mentoring Our People

Donna S. Zhukovsky1, Eduardo Bruera1, MR Rajagopal2,3,4, Gary Rodin5,6

1. The University of Texas MD Anderson Cancer Center, Houston, TX, United States
2. Trivandrum Institute of Palliative Sciences, Kerala, India
3. WHO Collaborating Centre for Training and Policy on Access to Pain Relief, Kerala, India
4. Arumanan Hospital, Kerala, India
5. University of Toronto, Toronto, ON, Canada
6. Princess Margaret Cancer Centre, Toronto, ON, Canada

By the end of the session, it is anticipated that participants of diverse backgrounds and experience will have an improved understanding of the role that mentorship can play in professional development, ways to access local and distant mentors and how to mutually benefit from mentor-mentee relationship

B08
PROFFERED PAPERS – COMPASSIONATE COMMUNITIES

Three 20-minute presentations, each followed by a 10-minute question period

A) Jump on the Bus! Palliative Care Is “Everyone’s Business”

Denise Marshall1,2, Kathy Kortes-Miller1, José Pereira1, Srini Chary1, Kathryn Downer1

1. Pallium Canada, Ottawa, ON, Canada
2. McMaster University, Hamilton, ON, Canada

B) Going Public: Integrating Palliative Care, Health Promotion and Public Health in Sweden Through the DöBra Research Program

Carol Tishelman1,2, Olav Lindqvist1,3

1. Karolinska Institutet, Stockholm, Sweden
2. Karolinska University Hospital, Stockholm, Sweden
3. Umeå University, Umeå, Sweden

C) Compassionate Communities: How Do We Get There?

Eman Hassan1, Terry Webber1, Doris Barwich1, 2

1. BC Centre for Palliative Care, New Westminster, BC, Canada
2. University of British Columbia, Vancouver, BC, Canada

B09
PROFFERED PAPERS – SPIRITUALITY

A series of 15-minute presentations, each followed by a 5-minute question period

A) Sacred Stories and Human Suffering: A Palliative Approach to Chaplaincy

Aaron Klink, , Pruitt Hospice, Durham, NC, United States

B) Mobilizing the Gaelic Mindfulness of John O’Donohue for Presence in Palliative Care Practice

Sheryl Shermak, University of Victoria, Victoria; Island Health, Port Alberni, BC, Canada

C) Gaelic Rituals Around Death and Dying - The Concept of 'Home'

Mark Sheridan1, Maria McGill2, Mark Hazelwood3

1. University of the Highlands and Islands, Inverness, Scotland, United Kingdom
2. Childrens Hospice Association Scotland, Edinburgh, Scotland, United Kingdom
3. Scottish Partnership for Palliative Care, Edinburgh, Scotland, United Kingdom

B10
PROFFERED PAPERS – FAMILY CAREGIVERS

A series of 15-minute presentations, each followed by a 5-minute question period/p>

A) Primary Caregivers’ Experiences of Caring for Patients Under Hospice Care at Home

Jacek Soroka, Mayo Clinic Health System, Mankato, MN, United States and International Observatory on End of Life Care, Lancaster University, Lancaster, United Kingdom

B) The Moral Ambivalence of Informal Care for the Dying: Qualitative Study of Carers' Experiences at the End of Life

Alex Broom, University of New South Wales, Sydney, Australia

C) Why Not Ask the Experts? Family Caregivers' Experiences of Providing Palliative and End-of-Life Care

Lisa Williams, Tess-Moeke Maxwell, Stella Black, Gabriella Trussardi, Janine Wiles, Merryn Gott, Ngaire Kerse, University of Auckland, Auckland, New Zealand

D) Current and Bereaved Caregiver Perceptions of a Psychoeducation Program

Pamela Durepos1,5,6, Sharon Kaasalainen1, Sandra Carroll2,3, Alexandra Papaioannou1,4

1. McMaster University, Hamilton, ON, Canada
2. Hamilton Health Sciences Corporation, Hamilton, ON, Canada
3. Population Health Research Institute, Hamilton Health Sciences Corporation, Hamilton, ON, Canada
4. GERAS Centre, Hamilton Health Sciences / St Peter's Hospital, Hamilton, ON, Canada
5. Technology Evaluation in the Elderly Network, Kingston, ON, Canada
6. Shalom Village Nursing Home, Hamilton, ON, Canada

B11
PROFFERED PAPERS – RESEARCH METHODS

Three 20-minute presentations, each followed by a 10-minute question period

A) Development of an instrument to Assess Psycho-social Spiritual Healing: The NIH HEALS

Ann Berger, Danetta Hendricks Sloan, National Institutes of Health, Bethesda, MD, United States

B) So an Anthropologist Walks into a Palliative Care Unit…

Marian Krawczyk, Centre for Health Evaluation and Outcome Sciences, Vancouver, BC, Canada; Trinity Western University, Langley, BC, Canada; Technology Evaluation in the Elderly Network, Kingston, ON., Canada

C) Introduction to Rasch Measurement Methodology

Bruno Gagnon1,2,3, Giovani G. Arcuri4,5, Amel Baghdadli1,3

1. Centre de recherche clinique et évaluative en oncologie, Québec, QC, Canada
2. Centre de recherche sur le cancer, Québec, QC, Canada
3. Laval University, Québec, QC, Canada
4. Royal Victoria Hospital, McGill University Health Centre, Montréal, QC, Canada
5. McGill University, Montréal, QC Canada

B12
ATELIER ET PRÉSENTATIONS COURTES – LA FIN DE VIE

Un atelier de 45 minutes, et deux exposés de 15 minutes, chacun suivi d’une période de questions de 5 minutes.

A) La physiologie de la fin de vie

Patrick Vinay, professeur émérite, Université de Montréal, Montréal, QC, Canada

Les changements physiologiques en fin de vie causent : 1-Une déplétion en NO dans l’air inspiré, réduisant l’adaptation aux obstructions intra-bronchiolaires. 2-Une hypoalbuminémie réduisant la production métabolique de CO2 avec des pauses respiratoires. 3-Une sécrétion accrue d’ADH exagérant les douleurs tumorales. 4-Une baisse des endorphines imposant un apport accru d’opioïdes pour supprimer la douleur croissante du malade.

B) Survie des patients atteints de cancers solides incurables : validation externe prospective d’un score pronostique

Delphine Prénat-Molimard1, Anne Perroziello1, Charles Joussellin1, Benoit Molimard2, Bénédicte De Corbière3

1. CHU Bichat, Paris, France
2. Hôpital d'instruction des armées Bégin, St Mandé, France
3. CHU Beaujon, Clichy, France

C) Participation des proches aux toilettes mortuaires : analyse des pratiques dans 2 USP

Marion Broucke1, Bernard Devalois2, Johann Chatain1,2, Martine Trouillet2

1. CHU Paris Sud, site Paul Brousse, Villejuif, France
2. CH René Dubos, Pontoise, France

15:30 – 16:00 – BREAK / PAUSE

16:00 – 17:00
CHOIX ENTRE LES SÉMINAIRES SPÉCIAUX (C01 ou C02) OU LES ATELIERS SIMULTANÉS (C03 – C12)
C01
SÉMINAIRE SPÉCIAL

L’ABC DES SOINS INFIRMIERS PALLIATIFS

(3e partie – voir l’encadré à la page 16)

C02
E=>F
SÉMINAIRE SPÉCIAL

PHARMACOTHÉRAPIE ET SOINS PALLIATIFS

((3e partie – voir l’encadré à la page 17))

C03

Improving Respiratory Symptoms in Children with Severe Neurological Impairment: Beyond Anticholinergics and Morphine

Julie Hauer, Shih-Ning Liaw, Boston Children's Hospital, Boston, MA, United States

This session will highlight triggers for respiratory symptoms that are unique to individuals with neurological impairment (e.g. muscle spasms, dysautonomia, overfeeding). Strategies to manage this frequent symptom will be reviewed.

C04

Transforming Moral Distress into Moral Resilience

Cynda Rushton, Johns Hopkins University, Baltimore, MD, United States

Moral distress is a pervasive experience of clinicians caring for people with lifethreatening source of moral distress with fewer methods for mitigating the detrimental effects. This session will explore the background of moral distress and offer a promising method for cultivating moral resilience in response to the inevitable moral distress clinicians confront. A conceptual model and methods for building moral resilience will be discussed.

C05

The History of Pain

Joanna Bourke, Birkbeck College, University of London, London, United Kingdom

Figurative languages are central to all attempts at communicating unpleasant sensations to oneself as well as to others. Pain-talk is swollen with metaphor, simile, metonym, and analogy. Why are such linguistic devices so crucial to painful experiences? Can the exploration of the figurative or metaphorical languages of pain enable us to speculate on what pain “actually feels like”?

C06
PROFFERED PAPERS – ARTS & HUMANITIES

A series of 15-minute presentations, each followed by a 5-minute question period

A) Integrating Arts Into Palliative Care: Reshaping Maslow’s Pyramid

Patricia Repar, Lisa Marr, University of New Mexico, Albuquerque, NM, United States

B) Examining Lived Experiences of Singing in a Bereavement Support Music Therapy Group

Laurel Young1, Adrienne Pringle2

  1. Concordia University, Montréal, QC, Canada
  2. Carpenter Hospice, Burlington, ON, Canada

C) The Effects of Music Therapy Interventions on Symptom Management in Palliative Medicine Patients

Lisa Gallagher1,2, Ruth Lagman2

  1. Cleveland Clinic Arts and Medicine Institute, Cleveland, OH, United States
  2. Cleveland Clinic Taussig Cancer Institute, Cleveland, OH, United States

C07
PROFFERED PAPERS – PALLIATIVE CARE IN DEVELOPING COUNTRIES

A series of 15-minute presentations, each followed by a 5-minute question period

A) Palliative Care in Post Complex Humanitarian Crisis: Experiences from Rwanda Post-Genocide Society

Christian Ntizimira1, Magnus Gasana3, Olive Mukeshimana2, Scholastique Ngizwenayo2

  1. Rwanda Palliative Care and Hospice Organisation, Kigali, Rwanda
  2. Kibagabaga Hospital, Kigali, Rwanda
  3. University Teaching Hospital (CHUK), Kigali, Rwanda

B) The 2015 Quality of Death Index – Why We Rank Second Last?

Rumana Dowla, Bangladesh Palliative and Supportive Care Foundation and United Hospital, Dhaka, Bangladesh

C) Integrating Palliative Care in Health System in Developing Countries: Case (Example) of Rwanda

Diane Mukasahaha, Marie Aimee Muhimpundu, Jean Claude Tayari, Rwanda Biomedical Center, Ministry of Health, Kigali, Rwanda

C08
PROFFERED PAPERS – CLINICAL ISSUES

A series of 15-minute presentations, each followed by a 5-minute question period

A) A Pilot Study of a MEdication RAtionalization (MERA) Intervention

Rachel Whitty1,2, Ellen Koo1, Sandra Porter1, Kiran Battu1, Csilla Kalocsai3, Pranjal Bhatt2, Kendra Delicaet1, Gary Wong1,2, Robert Wu1,2, Isaac Bogoch1,2, James Downar1,2

  1. University Health Network, Toronto, ON, Canada
  2. University of Toronto, Toronto, ON, Canada
  3. Sunnybrook Research Institute, Toronto, ON, Canada

B) Psychotropic and Narcotic Drug Use in Older Women Diagnosed with Breast Cancer Across the Cancer Care Trajectory

Sue-Ling Chang1, Ania Syrowatka1, Nancy Mayo1, Robyn Tamblyn1, Ari Meguerditchian1,2

  1. McGill University, Montréal, QC, Canada
  2. McGill University Health Centre, Montréal, QC, Canada

C) Decision-Making of Treatment In Advanced Lung Cancer: Results from the First Three Stages of the PACT Study (An Intervention to Support Advanced Lung Cancer Patients and Their Clinicians When Considering Systemic Anti-Cancer Therapy)

Despina Anagnostou1, Anthony Byrne1, Stephanie Sivell1, Catherine Sampson1, Simon Noble1, Jason Lester2, Annmarie Nelson1

  1. Cardiff University, Cardiff, United Kingdom
  2. Velindre Hospital, Velindre NHS Trust, Cardiff, United Kingdom

C09
PROFFERED PAPERS – COMMUNICATION / HOPE

A series of 15-minute presentations, each followed by a 5-minute question period

A) Language and Its Implications: How Do We Introduce Palliative Care to Patients with Advanced Cancer?

Jennifer Philip, Anna Collins, Centre for Palliative Care, St Vincent’s Hospital, and University of Melbourne, VIC, Australia

B) “This is kind of like the last hope”: Caregivers' Experience in DecisionMaking When Palliative Cancer Patients Are Enrolled in Phase 1 Clinical Trials

Naomi Kogan1, Michelle Dumas2, S. Robin Cohen3

  1. Sir Mortimer B. Davis Jewish General Hospital, Montréal, QC, Canada
  2. Independent Researcher, Montréal, QC, Canada
  3. Lady Davis Institute, Sir Mortimer B. Davis Jewish General Hospital, Montréal, QC, Canada

C) Embodying Ambiguous Spaces of Living <=> Dying: Everyday Life with Metastatic Breast Cancer as a Chronic Health Condition

Sheryl Shermak, University of Victoria, Victoria, BC, Canada.

C10
PROFFERED PAPERS – WHOLE PERSON CARE

Two 20-minute presentations, each followed by a 10-minute question period

A) Towards a Global and Culturally Sensitive Understanding of Spiritual Care: An International Study of Patients’ and Family Members’ Views and Experiences of Spiritual Care Across 9 Countries

Lucy Ellen Selman1, Shane Sinclair2, Ikali Karvinen3, Mieke Vermandere4, Myra Glajchen5, Christina Puchalski6, Nancy Gikaara7, Joy Hunter8, Richard A. Powell9, Ewa Deskur10, Jinsun (Sr. Juliana) Yong11, On behalf of the InSpirit Collaborative

  1. King's College London, Cicely Saunders Institute, London, United Kingdom
  2. University of Calgary, Calgary, AB, Canada
  3. Diaconia University of Applied Sciences, Helsinki, Finland
  4. KU Leuven, Leuven, Belgium
  5. MJHS Hospice and Palliative Care, New York, NY, United States
  6. The George Washington University, Washington, DC, United States
  7. Nairobi Hospice, Nairobi, Kenya
  8. University of Cape Town, Cape Town, South Africa
  9. MWAPO Health Development Group, Nairobi, Kenya
  10. Poznan University of Medical Sciences, Poznan, Poland
  11. The Catholic University of Korea, Seoul, Republic of Korea

B) Compassionate Care: Bridging the Gap Between Theory and Practice

Shane Sinclair1, Thomas F. Hack2, Susan McClement2, Shelley Raffin-Bouchal1

  1. University of Calgary, Calgary, AB, Canada
  2. University of Manitoba, Winnipeg, MB, Canada

C11
PRÉSENTATIONS COURTES – LA SOUFFRANCE PSYCHOLOGIQUE

Deux exposés de 20 minutes chacun suivi d’une période de questions de 10 minutes.

A) Les défis de la souffrance existentielle à l’ère de l’aide médicale à mourir : la prévenir, la reconnaître, la prendre en charge

Marie-Christine Carrier1, Andréanne Côté1, 2

  1. Université de Montréal, Montréal, QC, Canada
  2. Centre Hospitalier de l'Université de Montréal, Montréal, QC, Canada

B) Mieux comprendre la souffrance psychologique des hommes âgés atteints d'un cancer incurable : le point de vue des intervenants

Valérie Bourgeois-Guérin1, Antonin Marquis1, Rock-André Blondin1, Isabelle Van Pevenage3, Patrick Durivage2

  1. Université du Québec à Montréal, Montréal, QC, Canada
  2. C.S.S.S. Cavendish, Montréal, QC, Canada
  3. Université de Montréal, Montréal, QC, Canada

C12

Le «stabat femina» en soins palliatifs

Stabat :, se tenir, tenir bon, ensemble et avec, fondement de toute institution. Au sein du mouvement des soins palliatifs, comment le féminin - par quelques figures méconnues - contribue-t-il au principe «institution», dans le devenir même des sociétés? Exposé accompagné de la prestation d’une artiste du corps, suivi de discussion.

17:00 - 18:30

Une période pour découvrir les affiches sélectionnées et rencontrer les auteurs