Detailed Agenda

Nam vel leo. Cras vulputate risus ac turpis. Aenean bibendum diam nec enim. Curabitur mollis hendrerit neque. Phasellus euismod nisl non quam viverra elementum. Nullam dolor est, hendrerit sed, eleifend sed, eleifend sed, eros. Cras vestibulum, orci molestie commodo congue, massa enim commodo dolor, non adipiscing lectus purus non metus. Integer nec erat ut nibh fringilla euismod.

Tuesday, October 18, 2016
09:00 – 17:30
CHOICE OF CONCURRENT ALL-DAY SEMINARS / CHOIX DE SÉMINAIRES SIMULTANÉS D’UNE JOURNÉE (S1, S2, S3, S4 or S5)
Co-Chairs: Bessy Bitzas, Maryse Bouvette, David Wright

09:00 – 10:30

Palliative Care in the Rural Community

Barbara Pesut, Canadian Research Chair in Health, Ethics and Diversity, Associate Professor, University of British Columbia, Vancouver, BC

11:00 - 12:30

Theory of Intellectual Capital in Nursing

Christine Covell, University of Ottawa, Ottawa, ON

11:00 – 12:30

PROFFERED PAPERS

Responding to Physical Suffering

A Scoping Review on Pain Assessment and Management in Pediatric Palliative Care

Kimberley Widger1, 2, Bonnie Stevens1, 2, Hal Siden3, Stephen Liben4, Janet Yamada2, Thomasin Adams-Webber2, Adam Rapoport1, 2, 5

1. University of Toronto, Toronto, ON, Canada; 2. Hospital for Sick Children, Toronto, ON, Canada; 3. University of British Columbia, Vancouver, BC, Canada; 4. Montreal Children's Hospital, Montréal, QC, Canada; 5. University Health Center Mount Sinai Hospital, Toronto, ON, Canada

Unleashing the Potential of Routine Clinical Records as a Data Source: Use of Consensus Methods for Instrument Development in Investigating Breakthrough Pain in Children with Life-Limiting Conditions

Paula Kelly1, 3, Joanna Crocker1, Myra Bluebond-Langner1, Dilini Rajapaske2

1. University College London Institute of Child Health, London, United Kingdom; 2. Louis Dundas Centre for Children’s Palliative Care GreatOrmond Street Hospital, London, United Kingdom; 3. Florence Nightingale School of Nursing and Midwifery Kings College, London, United Kingdom

Fatigue Reported by Children with Cancer in the PediQUEST Study: Patterns, Correlates and Potential Targets

Christina Ullrich1, 2, 3, Kun Chen1, Liliana Orellana4, Tammy Kang5, 6, Chris Feudtner5, 6, Russ Geyer7, 8, 9, Veronica Dussel1, 2, 10, Joanne Wolfe1, 2, 3

1. Dana-Farber Cancer Institute, Boston, MA, USA; 2. Boston Children's Hospital, Boston, MA, USA; 3. Harvard Medical School, Boston, MA, USA; 4. Institute of Calculus, School of Sciences, University of Buenos Aires, Buenos Aires, Argentina; 5. The Children's Hospital of Philadelphia, Philadelphia, PA, USA; 6. Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA; 7. Seattle Children’s Hospital, Seattle, WA, USA; 8. Fred Hutchinson Cancer Research Center, Seattle, WA, USA; 9. University of Washington, Seattle, WA, USA; 10. Institute for Clinical Effectiveness and Health Policy, Buenos Aires, Argentina/p>

Measure Yourself Quality of Life Tool: A Simple, Individualised IT Approach to Improving Care in Longterm and Life-limiting Conditions

Nicky Harris1, Antonia Beringer2, Margaret Fletcher2

1. Children's Hospice South West, Fremington, Devon, United Kingdom 2. University of West of England, Bristol, United Kingdom

14:00 – 15:30

Following in the Steps of a Pioneer in Pediatric Palliative Care

Reflections on the Work and Influence of Betty Davies

Rose Steele, School of Nursing, York University, Toronto, ON, Canada

The Influence of Betty Davies in Children’s Bereavement Practice and Research

Charles Corr, Tampa Bay, FL, United States

Comments and Discussion

Betty Davies, School of Nursing, University of Victoria, Victoria, BC, Canada

16:00 – 17:30

PROFFERED PAPERS Family Matters: Parental and Sibling Grief

Siblings’ Perspectives of their Role and Their Involvement with a Dying Child

Alexandra Neville1, Ceilidh Eaton Russell2, Laura Beaune1, Kimberley Widger1, 3, Rose Steele6, Adam Rapoport1, 2, Susan Cadell5, Maria Rugg4, Maru Barrera1

1. The Hospital for Sick Children, Toronto, ON, Canada; 2. Mount Sinai Hospital, Toronto, ON, Canada; 3. University of Toronto, Toronto, ON, Canada; 4. Carlo F. Regional Cancer Centre at Credit Valley, Mississauga, ON, Canada; 5. Renison University College, Waterloo, ON, Canada; 6. York University, Toronto, ON, Canada

Fathers' Experiences After the Death of Their Child

Anne-Marie Martinez1, 2, Marie-Claude Proulx1, Franco Carnevale1, 3, Alain Legault2

1. Montreal Children's Hospital, Montréal, QC, Canada; 2. Université de Montréal, Montréal, QC, Canada; 3. McGill University, Montréal, QC, Canada

Understanding How Newly Bereaved Parents Cope with Their Grief in Order to Improve the Services Provided to Them

Moire Stevenson1, Marie Achille1, Stephen Liben2, Marie-Claude Proulx2, Nago Humbert3, Antoinette Petti3, Mary Ellen Macdonald4, S. Robin Cohen4

1. Université de Montréal, Montréal, QC, Canada; 2. Montreal Children's Hospital, Montréal, QC, Canada; 3. CHU Sainte-Justine, Montréal, QC, Canada; 4. McGill University, Montréal, QC, Canada

Discussion

Continued on Wednesday, September 10, sessions A01, B01, C01
Organizers and Co-Chairs: Stephen Liben, The Montreal Children’s Hospital, MUHC, Montréal, QC, Canada and Mary Ellen Macdonald, McGill University, Montréal, QC, Canada Pediatric palliative care has evolved from its ‘early days.’ On this 40th Anniversary we will reflect on where we came from and where we hope to be going. Come, join in the conversation!

09:00 – 09:45

Where Have We Come From? Journeys in Pediatric Palliative Care – A Conversation with Ann Goldman

Ann Goldman, London, United Kingdom

This lecture will review guidelines for the treatment of hernias, hydroceles, and cryptorchidism, as well as the diagnosis and treatment of inguinoscrotal emergencies, including incarcerated hernia and testicular torsion.

09:45 – 10:30

PANEL DISCUSSION

Where Are We Going?

11:00 – 12:30

PROFFERED PAPERS

Responding to Physical Suffering

A Scoping Review on Pain Assessment and Management in Pediatric Palliative Care

Kimberley Widger1, 2, Bonnie Stevens1, 2, Hal Siden3, Stephen Liben4, Janet Yamada2, Thomasin Adams-Webber2, Adam Rapoport1, 2, 5

1. University of Toronto, Toronto, ON, Canada; 2. Hospital for Sick Children, Toronto, ON, Canada; 3. University of British Columbia, Vancouver, BC, Canada; 4. Montreal Children's Hospital, Montréal, QC, Canada; 5. University Health Center Mount Sinai Hospital, Toronto, ON, Canada

Unleashing the Potential of Routine Clinical Records as a Data Source: Use of Consensus Methods for Instrument Development in Investigating Breakthrough Pain in Children with Life-Limiting Conditions

Paula Kelly1, 3, Joanna Crocker1, Myra Bluebond-Langner1, Dilini Rajapaske2

1. University College London Institute of Child Health, London, United Kingdom; 2. Louis Dundas Centre for Children’s Palliative Care GreatOrmond Street Hospital, London, United Kingdom; 3. Florence Nightingale School of Nursing and Midwifery Kings College, London, United Kingdom

Fatigue Reported by Children with Cancer in the PediQUEST Study: Patterns, Correlates and Potential Targets

Christina Ullrich1, 2, 3, Kun Chen1, Liliana Orellana4, Tammy Kang5, 6, Chris Feudtner5, 6, Russ Geyer7, 8, 9, Veronica Dussel1, 2, 10, Joanne Wolfe1, 2, 3

1. Dana-Farber Cancer Institute, Boston, MA, USA; 2. Boston Children's Hospital, Boston, MA, USA; 3. Harvard Medical School, Boston, MA, USA; 4. Institute of Calculus, School of Sciences, University of Buenos Aires, Buenos Aires, Argentina; 5. The Children's Hospital of Philadelphia, Philadelphia, PA, USA; 6. Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA; 7. Seattle Children’s Hospital, Seattle, WA, USA; 8. Fred Hutchinson Cancer Research Center, Seattle, WA, USA; 9. University of Washington, Seattle, WA, USA; 10. Institute for Clinical Effectiveness and Health Policy, Buenos Aires, Argentina/p>

Measure Yourself Quality of Life Tool: A Simple, Individualised IT Approach to Improving Care in Longterm and Life-limiting Conditions

Nicky Harris1, Antonia Beringer2, Margaret Fletcher2

1. Children's Hospice South West, Fremington, Devon, United Kingdom 2. University of West of England, Bristol, United Kingdom

14:00 – 15:30

Following in the Steps of a Pioneer in Pediatric Palliative Care

Reflections on the Work and Influence of Betty Davies

Rose Steele, School of Nursing, York University, Toronto, ON, Canada

The Influence of Betty Davies in Children’s Bereavement Practice and Research

Charles Corr, Tampa Bay, FL, United States

Comments and Discussion

Betty Davies, School of Nursing, University of Victoria, Victoria, BC, Canada

16:00 – 17:30

PROFFERED PAPERS Family Matters: Parental and Sibling Grief

Siblings’ Perspectives of their Role and Their Involvement with a Dying Child

Alexandra Neville1, Ceilidh Eaton Russell2, Laura Beaune1, Kimberley Widger1, 3, Rose Steele6, Adam Rapoport1, 2, Susan Cadell5, Maria Rugg4, Maru Barrera1

1. The Hospital for Sick Children, Toronto, ON, Canada; 2. Mount Sinai Hospital, Toronto, ON, Canada; 3. University of Toronto, Toronto, ON, Canada; 4. Carlo F. Regional Cancer Centre at Credit Valley, Mississauga, ON, Canada; 5. Renison University College, Waterloo, ON, Canada; 6. York University, Toronto, ON, Canada

Fathers' Experiences After the Death of Their Child

Anne-Marie Martinez1, 2, Marie-Claude Proulx1, Franco Carnevale1, 3, Alain Legault2

1. Montreal Children's Hospital, Montréal, QC, Canada; 2. Université de Montréal, Montréal, QC, Canada; 3. McGill University, Montréal, QC, Canada

Understanding How Newly Bereaved Parents Cope with Their Grief in Order to Improve the Services Provided to Them

Moire Stevenson1, Marie Achille1, Stephen Liben2, Marie-Claude Proulx2, Nago Humbert3, Antoinette Petti3, Mary Ellen Macdonald4, S. Robin Cohen4

1. Université de Montréal, Montréal, QC, Canada; 2. Montreal Children's Hospital, Montréal, QC, Canada; 3. CHU Sainte-Justine, Montréal, QC, Canada; 4. McGill University, Montréal, QC, Canada

Discussion

Continued on Wednesday, September 10, sessions A01, B01, C01
Organizers and Co-Chairs: Stephen Liben, The Montreal Children’s Hospital, MUHC, Montréal, QC, Canada and Mary Ellen Macdonald, McGill University, Montréal, QC, Canada Pediatric palliative care has evolved from its ‘early days.’ On this 40th Anniversary we will reflect on where we came from and where we hope to be going. Come, join in the conversation!

09:00 – 09:45

Where Have We Come From? Journeys in Pediatric Palliative Care – A Conversation with Ann Goldman

Ann Goldman, London, United Kingdom

This lecture will review guidelines for the treatment of hernias, hydroceles, and cryptorchidism, as well as the diagnosis and treatment of inguinoscrotal emergencies, including incarcerated hernia and testicular torsion.

09:45 – 10:30

PANEL DISCUSSION

Where Are We Going?

11:00 – 12:30

PROFFERED PAPERS

Responding to Physical Suffering

A Scoping Review on Pain Assessment and Management in Pediatric Palliative Care

Kimberley Widger1, 2, Bonnie Stevens1, 2, Hal Siden3, Stephen Liben4, Janet Yamada2, Thomasin Adams-Webber2, Adam Rapoport1, 2, 5

1. University of Toronto, Toronto, ON, Canada; 2. Hospital for Sick Children, Toronto, ON, Canada; 3. University of British Columbia, Vancouver, BC, Canada; 4. Montreal Children's Hospital, Montréal, QC, Canada; 5. University Health Center Mount Sinai Hospital, Toronto, ON, Canada

Unleashing the Potential of Routine Clinical Records as a Data Source: Use of Consensus Methods for Instrument Development in Investigating Breakthrough Pain in Children with Life-Limiting Conditions

Paula Kelly1, 3, Joanna Crocker1, Myra Bluebond-Langner1, Dilini Rajapaske2

1. University College London Institute of Child Health, London, United Kingdom; 2. Louis Dundas Centre for Children’s Palliative Care GreatOrmond Street Hospital, London, United Kingdom; 3. Florence Nightingale School of Nursing and Midwifery Kings College, London, United Kingdom

Fatigue Reported by Children with Cancer in the PediQUEST Study: Patterns, Correlates and Potential Targets

Christina Ullrich1, 2, 3, Kun Chen1, Liliana Orellana4, Tammy Kang5, 6, Chris Feudtner5, 6, Russ Geyer7, 8, 9, Veronica Dussel1, 2, 10, Joanne Wolfe1, 2, 3

1. Dana-Farber Cancer Institute, Boston, MA, USA; 2. Boston Children's Hospital, Boston, MA, USA; 3. Harvard Medical School, Boston, MA, USA; 4. Institute of Calculus, School of Sciences, University of Buenos Aires, Buenos Aires, Argentina; 5. The Children's Hospital of Philadelphia, Philadelphia, PA, USA; 6. Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA; 7. Seattle Children’s Hospital, Seattle, WA, USA; 8. Fred Hutchinson Cancer Research Center, Seattle, WA, USA; 9. University of Washington, Seattle, WA, USA; 10. Institute for Clinical Effectiveness and Health Policy, Buenos Aires, Argentina/p>

Measure Yourself Quality of Life Tool: A Simple, Individualised IT Approach to Improving Care in Longterm and Life-limiting Conditions

Nicky Harris1, Antonia Beringer2, Margaret Fletcher2

1. Children's Hospice South West, Fremington, Devon, United Kingdom 2. University of West of England, Bristol, United Kingdom

14:00 – 15:30

Following in the Steps of a Pioneer in Pediatric Palliative Care

Reflections on the Work and Influence of Betty Davies

Rose Steele, School of Nursing, York University, Toronto, ON, Canada

The Influence of Betty Davies in Children’s Bereavement Practice and Research

Charles Corr, Tampa Bay, FL, United States

Comments and Discussion

Betty Davies, School of Nursing, University of Victoria, Victoria, BC, Canada

16:00 – 17:30

PROFFERED PAPERS Family Matters: Parental and Sibling Grief

Siblings’ Perspectives of their Role and Their Involvement with a Dying Child

Alexandra Neville1, Ceilidh Eaton Russell2, Laura Beaune1, Kimberley Widger1, 3, Rose Steele6, Adam Rapoport1, 2, Susan Cadell5, Maria Rugg4, Maru Barrera1

1. The Hospital for Sick Children, Toronto, ON, Canada; 2. Mount Sinai Hospital, Toronto, ON, Canada; 3. University of Toronto, Toronto, ON, Canada; 4. Carlo F. Regional Cancer Centre at Credit Valley, Mississauga, ON, Canada; 5. Renison University College, Waterloo, ON, Canada; 6. York University, Toronto, ON, Canada

Fathers' Experiences After the Death of Their Child

Anne-Marie Martinez1, 2, Marie-Claude Proulx1, Franco Carnevale1, 3, Alain Legault2

1. Montreal Children's Hospital, Montréal, QC, Canada; 2. Université de Montréal, Montréal, QC, Canada; 3. McGill University, Montréal, QC, Canada

Understanding How Newly Bereaved Parents Cope with Their Grief in Order to Improve the Services Provided to Them

Moire Stevenson1, Marie Achille1, Stephen Liben2, Marie-Claude Proulx2, Nago Humbert3, Antoinette Petti3, Mary Ellen Macdonald4, S. Robin Cohen4

1. Université de Montréal, Montréal, QC, Canada; 2. Montreal Children's Hospital, Montréal, QC, Canada; 3. CHU Sainte-Justine, Montréal, QC, Canada; 4. McGill University, Montréal, QC, Canada

Discussion

Continued on Wednesday, September 10, sessions A01, B01, C01

17:30 – 19:00 • ROOM 710

Welcome Reception Celebrating 40 Years of Sharing, Inspiring, Renewing!
Please join us for a glass of wine and some light refreshments at the Welcome Reception. A great opportunity to meet up with old friends and to meet new ones in a relaxing ambience.

19:00 – 20:30 • ROOM 516 AB

FREE PUBLIC LECTURE
The David Bourke Memorial Lecture
Presented by the Council on Palliative Care
The Art of Dying
Guest Speaker / Conférencier invité :
Peter Fenwick, MD, FRCPsych Cantab
Honorary Senior Lecturer, Kings College, Institute of Psychiatry London, United Kingdom
Dr. Fenwick is an eminent neuropsychiatrist, academic and expert on disorders of the brain. His most compelling and provocative research has been into the end-of-life phenomena, including near-death experiences and deathbed visions of the dying person, as well as the experiences of hospice and palliative care workers and relatives of dying people.

The lecture will be in English.
Open to all Congress participants and the general public.